1 in a million

[Selkington]

Hi all you lovely ladies - hope you are all as well as can be & have found some joy if only for a moment today. I haven’t updated on what’s been happening for me as I have been distracting myself with a trilogy, a bit of escapism from life. My surgery date was sent in the mail and was quickly cancelled until further notice. I then was told I had an appointment with General Surgery and not advised why. Of all my appointments that I should have had someone with me, due to sick children neither my sister or mother could make it. So I went alone. As the consultant sat down and asked if I knew why I was there, I advised him I had no idea. He went on to explain that I have a very rare type of cancer called Pseudomyxoma peritoneii, only every 1 in a million people get this. Melon is most likely a result of the cancer spreading to the ovary from my appendix. The good news is that the cancer is curable. The bad news is that I’m on a different waiting list and need to wait 2-4 months maybe more. So it’s good and bad news, it seems that if there were a cancer to have this would be it. And apparently I’m young enough I should bounce back pretty quickly. Here’s hoping the next few months fly by like the past few have done and I’ll be in and out of surgery and working on a full recovery. Thank you all for all your amazing support and kind words. I wish everyone of you love and hope and joy xx hugs from Sam

[Yoshbosh]

Hi Sam,

Can you ask for a referral to Basingstoke? I believe they specialise in the type of cancer you are suspected of having. I can’t believe you have to wait so long, but at least it isn’t really urgent!

Vicki x

[OvacomeSupport Partner My Ovacome Team in reply to Yoshbosh]

Hello Sam

Just to say Vicki is right, Basingstoke are a specialist centre for Pseudomyxoma peritoneii, and the other UK specialist centre is The Christie. Do get in touch with me if you need any further information.

Best wishes

Anna

Ovacome Support Service Manager

[mrsgrinchburger in reply to Yoshbosh]

I think Sam, is in Australia but I'm not 100% sure xx

[January-2016-UK in reply to mrsgrinchburger]

Her profile says New Zealand.

[lorraine71-Australia]

Hi Sam, Glad to read the words curable but it is a long time to wait but I'm sure if your oncologist thought it was urgent it would be done sooner.

So get yourself in the best possable health ready for your surgery , take care Lorraine xx

[Bettyxxx]

Wow Sam

Thats amazing news a ticket off this bus, not many get one i am so happy for you x despite the wait i am sure you will look back in a year or so and this will just be like a bad dream x i agree with the others get yourself ‘match ready’ and do all those little jobs you wont be fit to do for a while afterwards x my best buy for after my op was a baggy dress from sainsburys and a comfy non wired bra!

Good luck in your journey and i would say buy a lottery ticket but i think you have your million pound jackpot 😉

Diane

X

[Marieloiuse]

A very unique lady indeed! So glad that things are looking good and as Lorraine said, they would be getting that thing outa you sooner rather than later if you were in danger.Hope the time flies before you are free of your pesky melon!

Catherine x

[lesleysage]

Gosh Sam,

Can't better what Vicki, Lorraine & Diane say - 'fantastic', explore earlier surgery and use the time to grow those healthy cells....the team at Queen Charlottes who did my second operation have established that even just 6 weeks of planned and managed physical fitness training before an operation brings significant benefits to the surgery itself, recovery from surgery and returning to normal life. My GP's 'prescription' for growing healthy cells is 'eat 'well' ("intelligently" he said he meant but 'well' is easier to say!!), exercise well and REST well; I found the last bit the hardest to master but I keep practicing and it does work for me.

Warm wishes for what will be a good day!

Lesley

[Cropcrop]

I can’t top Vicki's advice I am pleased it’s a ‘good’ cancer (😬) to have because of its cure rate and I just wanted to wish you well you one in a million person. Keep well while you wait for the next steps, we’re all here to help to take them lovely❤️Xx Jane

[Nancy222]

Was there ever a finer sentence than,

"The good news is that the cancer is curable."?

Big sigh of relief for you and your family.

XXOO

[Maxjor]

Such nice news if you have to have the big C that they tell you its curable. I agree--a long time to wait and not great for you mentally I would think (not knowing much about the physical aspects of that long a wait). But good luck and very glad for you. ooxoxxo

[ingrid48]

Hello, I personally do not believe it’s a good idea to wait 2-3 months. I would insist on a second opinion if you can. I found this for you . One the links has info to request more info also in England. They may be able to put a bit of pressure on the doc?

Unless the tumor is Non-malignant there is no such thing as a curable cancer to my knowledge

It was the mistake of a doctor that caused me to be a cancer victim 30 years ago and it was my persistence and stubbornness wanting to know and see more docs that kept me alive this long

I have a new cancer now again stage 4 primary peritoneal carcinoma fighting (stubbornness) ...for 7 years, but I’m 70 and I got to see all grandchildren...

Very tough 7 years 5 lines of chemo.. but some good months in between...

Never, ever just take what they say..

Research, read, ask, question,, study, go to library, google anything..

And be stubborn!

you may be interested in in reading these articles. Look for the reference they make in England maybe u can call them

Blessings!!

rarediseases.info.nih.gov/d...

[ingrid48 in reply to ingrid48]

Ps. I just want to add that you can absolutely have a very long life in “ remission “ !!

All I wanted to do above is to keep your options open!!

Love

Ingrid