Log in
My Ovacome
12,249 members14,618 posts

1 Month Down - all good on Niraparib/Zejula

Good news everyone!

Just finished with Oncology appointment after my first month on. My dosage was 200mgs per day, which I take in the morning.

Saw assistant consultant named Claire.

She was fine and I finally found out what a Registrar was - a doctor who is training to be a consultant.

Anyway, it was All good. Blood counts phenomenal. Totally in the normal range.

CA-125 stable at 15. The same as end of Carbo/Caelyx, but higher than after first line.

I am not disappointed.

It’s early days and amazing that I feel so well!

Meanwhile, I now only need bloods taken once a month and a scan will be every three months.

I have no unmanageable side effects to report. I get slight nausea in the morning, but I still have an enormous appetite! Darn! In my case, as I have gained too much weight for my liking, but always feel the urge to treat myself to goodies that were forbidden before I got sick. Oh well.. the least of our worries.

I feel like my old self, not the new normal I was at the end of first line.

Fingers crossed I stay this well.

Hope all of you are getting good treatment and that you all feel better, too.

Hugs,

Laura

61 Replies
oldestnewest

FANTASTIC news for you Laura. Long may it last. Live life, like the old you who has returned and shelve the stress of oc. Enjoy the summer and beyond.

Sylvia X

Reply

Thanks so much,

You, too.

Hugs,

Laura

Reply

👍.

Very good news indeed. All the best for the future.

Grace

Reply

And same to you,

Hugs,

Laura

Reply

That’s great news Laura.enjoy your summer 🌞🌞🌞xxx

Reply

You, too.

Hope you are doing well also!

Hugs,

Laura

Reply

Fantastic news ! lots of love to you laura and enjoy all the lovely food ... you deserve it x

Reply

Oh dear,

Too much enjoyment right now!

Hugs to you and your Min,

Laura

Reply

Excellent news, long may it stay this way for you. We’ve all had the rudest wake up call possible by this awful disease so if you enjoy treats carry on enjoying, live to eat, good stuff of course and enjoy the ride. I smell the coffee and the flowers each day and I put as much into life as I possibly can, none of us know how much life we have so we need to enjoy it as much as we possibly can so keep on keeping on lovely. Congrats on feeling so well. Love and hugs ❤️Xx Jane

1 like
Reply

You are very sweet, JANE.

Thanks for the kind words,

Many hugs,

Laura

Reply

That is great news and you deserve many good things to feel well as you always reply to people when they are low or vulnerable. You are so reassuring and positive, you are an asset to this lovely group. I don't post often but read how people are getting on. I will be getting another scan in 2 weeks to see if my chemo has worked and I am fit for de=bulking (talk about being between a rock and a hard place! who celebrates being fit for a big op!!) As always I am grateful for your thoughtful and wise responses and am so glad you are such a strong force in this group. All the best for continuing to feel good. thank you.

love and big hugs

short friend (pat) xx

1 like
Reply

That was such a lovely letter. You sound very cheerful for someone about to have the big op!

I hope all goes well. Recovery can be slow, but don’t try to rush it.

I wish you all the best,

And hugs,

Laura

Reply

Great news! Glad all is going well. Keep up the good work,

sticky3006 x

Reply

Thank you.

Hope you are doing well, too.

Hugs,

Laura

Reply

Very happy for you, Laura! Keep it up! Make the most of the summer that is coming and treat yourself as you deserve it! ;)Xx

Sending you much love from Portugal 💓

Reply

Thanks, Claudia,

I hope you get your next chemo and I hope it destroys your nasty rare cancer.

Keep up the fight,

Hugs,

Laura

Reply

Hello Laura

Everything is sounding fantastic for you. When I was on Niraparib I lost half a stone. I don’t know if that is normal.

I really hope everything carries on so well for you 🤞🤞🤞

Reply

I know it’s just vanity, but I was hoping to lose my appetite, but I seem to be hungrier than ever!

Oh well, at least I look as healthy as I feel.

Hope you are well, too.

Hugs,

Laura

Reply

Laura, that is wonderful news!!! I am so happy for you. Isn't it great to just be able to exhale?! May you always continue this way!

XOX

Marisa

Reply

Thanks so much, Marisa.

I feel great, but the worry is always there.

I wish we all could be free of it.

Hugs,

Laura

Reply

I hear you. That worry that just hangs there.....and then we move on.

Glad you are well!

XOX

Marisa

Reply

What wonderful news Laura, I am delighted by it all, you are particularly lucky to have great blood results on Niraparib. keep it up xx

Reply

Thank you.

I just hope this good luck keeps going.

Hope you are as well as can be,

Hugs,

Laura

Reply

Wonderful news Laura! I am so happy for you. Continue to enjoy your life. ❤️

Peggy xx

Reply

I shall, Peggy,

Taking a big bite out of the apple!

Hugs,

Laura ’

Reply

Love it! ❤️

Reply

Hello Laura, its good to hear your wonderful news & I’m so pleased for you. I have noticed how supportive you are of other Teal sisters on here and I’m sure we are all wishing you continued good health. Go girl!

xx

Reply

Thanks so much, Lit chick,

I have received so much support here and advice and guidance, also.

This forum has certainly been influential in my regaining my health.

Hope you are well.

Hugs,

Laura

Reply

That is fabulous news!! It really couldn't be better--except not getting OC in the first place! Long may it last!

Reply

Oh yes! Long may it last!

I hope you are doing well also.

Hugs,

Laura

Reply

I am so happy to hear this news, Laura! You are doing so well, and it’s great that you’re feeling like your old self 💕 I think that’s what we all are aiming for! 😊

xx Gina

Reply

Dear Gina,

Thanks so much.

I just hope it lasts. It was so easy to forget myself and now I’m so glad to be back!

Hugs,

Laura

Reply

So pleased for you Laura!! 💃🥂🔆

Reply

Thank you,

Hugs🥰

Laura

Reply

That's great news may it continue for a very long time!

Reply

Yes yes! Continue it must.

Hugs,

Laura

Reply

Great news Laura! I hope you can have a lovely summer now getting back to your old self again, take care love Vickie x

Reply

Thanks, Vickie.

Can’t believe it is summer again.

Time goes by so quickly when we are measuring our time with infusions or scans!

Hugs,

Laura

Reply

Hi Laura,

Its so good to hear your news as your story is so similar to my mum's and you give me lots of hope! Would you mind if I send you a pm so you can explain more about the niraparib as I'm trying to look at what's available to mum after her chemo finishes?

Take care and big hugs back!

Vickie x

Reply

Sorry it took so long for me to get back to you, Vickie, I am feeling so well, I am about to expand my business again.

I had to cut it in half when I was so Ill, which meant I halved our income and have not made ends meet for almost 2 years! Gee, that long...

So, very happy to receive a private message from you.

Hugs,

Laura

Reply

Great news - long may it continue! X

Reply

That Clare,

It just better continue!

I am not going back!

Hugs,

Laura

Reply

So pleased it’s working, Laura. I’m delighted for you. Love Jo 🌺🌼🌸🌻🌹

Reply

Dear Jo,

Thanks so much.

Like so many have wished, long May it continue!

Hugs,

Laura

Reply

Great news Laura I am so so pleased for you and long may it continue xx

Love good news xx

Reply

Thanks so much.

I am just happy to be healthy for a while. It’s a great feeling!

Hugs,

Laura

1 like
Reply

That all sounds v positive - enjoy it x

Reply

I am, Ethyl,

It’s so delightful to be able to walk the dog without getting breathless.

What a change!

Hugs,

Lay

Reply

Great news!

Reply

Thanks, Neona,

Good to get some good news once in a while.

Hugs,

Laura

Reply

Great news! You're an inspiration to us all.

Best wishes

Mary

Reply

Hi

FANTASTIC news Laura. Really pleased and hope it continues for a long time.

I am waiting for Scan results again. Fingers crossed but feeling reasonably well.

The warmer weather and sunshine certainly help.

Best wishes

Janet

Reply

Hi Jan,

I just hope that the Niraparib will keep us both stable.

By the way, I went back to taking an Omeprazole and a Cyclozine an hour before taking the Niraparib, just avert possible nausea which does come on now and then.

I take the PARP in the morning.

I keep Cyclizine and Omeprazole on me all the time.

But I mostly feel amazing.

Hope you will, too.

Hugs,

Laura

Reply

Hi Laura

I dropped omeprazole for rainitidine but still use cyclizine occasionally, especially if I am going out. Difficult choice cos feeling of nausea seems to be permanent

Enjoying the mild weather and getting out into the garden

App with Onc in two weeks for scan results.

Really glad you are feeling so well.

Long may it continue.

Very best wishes

Janet

Reply

Such great news! And just in time for summer-yeah!

Soak up all the sunshine and gorgeous dog walking opportunities you can❣️

I am so happy for you!

Christine x

Reply

Thanks, Christine,

You, too!

Hugs,

Laura

Reply

Hi Laura,

Am really pleased to hear you are doing so well on this. I see you are from Bath (same as me) so I guess you are under the care of Dr B. She said to me if I have a good response to Caelyx and Carbo then I could go on Niraparib at the end of the chemo. What did she class as a good response? I have had 4 out of 6 and am due my 5th round next Tuesday. I am seeing consultant tomorrow so I will ask about CA125 as so far it has just been stable (which Dr B has been happy with). Any advice really appreciated!

Pen

PS So pleased to hear that you feel like the old you xxx

Reply

Dear Pen,

I did not know you were in Bath! I would love to meet up if you are up to it.

I live in the centre.

I will private message you and you can think about it.

It’s a personal journey, but sharing the same Oncologist and the same disease is interesting.

Hugs,

Laura

Reply

Dear Laura

I am so happy for you that it’s working as I know it doesn’t for everyone. We are lucky that we’re responding to this part. You feel like a different person and alive. I’ve just been to New York with my lovely family and had a fabulous time making lovely memories spending quality time together. Never thought I’d be here this time last year. I’m sure you feel like a million dollars. All the very best wishes to you lovely lady 💐🌸🌞🌺 Margot 🙋

Reply

That’s such exciting news so happy for you🤗 hope it all continues 🙏🏻 Hugs

Reply

Good to hear congratulations 😉 I’m finishing second lune treatment with carbo/gemzar June 14 and then supposed to start on that or another parib .. hoping to have success and little side effects 🙏🏻 Always nice to know ladies doing well!! Thx for update ,, sue

Reply

You may also like...