1 Month Down - all good on Niraparib/Zejula - My Ovacome

My Ovacome

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1 Month Down - all good on Niraparib/Zejula

Lindaura profile image
61 Replies

Good news everyone!

Just finished with Oncology appointment after my first month on. My dosage was 200mgs per day, which I take in the morning.

Saw assistant consultant named Claire.

She was fine and I finally found out what a Registrar was - a doctor who is training to be a consultant.

Anyway, it was All good. Blood counts phenomenal. Totally in the normal range.

CA-125 stable at 15. The same as end of Carbo/Caelyx, but higher than after first line.

I am not disappointed.

It’s early days and amazing that I feel so well!

Meanwhile, I now only need bloods taken once a month and a scan will be every three months.

I have no unmanageable side effects to report. I get slight nausea in the morning, but I still have an enormous appetite! Darn! In my case, as I have gained too much weight for my liking, but always feel the urge to treat myself to goodies that were forbidden before I got sick. Oh well.. the least of our worries.

I feel like my old self, not the new normal I was at the end of first line.

Fingers crossed I stay this well.

Hope all of you are getting good treatment and that you all feel better, too.

Hugs,

Laura

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Lindaura profile image
Lindaura
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61 Replies
Birdsong222 profile image
Birdsong222

FANTASTIC news for you Laura. Long may it last. Live life, like the old you who has returned and shelve the stress of oc. Enjoy the summer and beyond.

Sylvia X

Lindaura profile image
Lindaura in reply to Birdsong222

Thanks so much,

You, too.

Hugs,

Laura

Grace-53 profile image
Grace-53

👍.

Very good news indeed. All the best for the future.

Grace

Lindaura profile image
Lindaura in reply to Grace-53

And same to you,

Hugs,

Laura

Manchesterlady profile image
Manchesterlady

That’s great news Laura.enjoy your summer 🌞🌞🌞xxx

Lindaura profile image
Lindaura in reply to Manchesterlady

You, too.

Hope you are doing well also!

Hugs,

Laura

claireRoberts76 profile image
claireRoberts76

Fantastic news ! lots of love to you laura and enjoy all the lovely food ... you deserve it x

Lindaura profile image
Lindaura in reply to claireRoberts76

Oh dear,

Too much enjoyment right now!

Hugs to you and your Min,

Laura

Cropcrop profile image
Cropcrop

Excellent news, long may it stay this way for you. We’ve all had the rudest wake up call possible by this awful disease so if you enjoy treats carry on enjoying, live to eat, good stuff of course and enjoy the ride. I smell the coffee and the flowers each day and I put as much into life as I possibly can, none of us know how much life we have so we need to enjoy it as much as we possibly can so keep on keeping on lovely. Congrats on feeling so well. Love and hugs ❤️Xx Jane

Lindaura profile image
Lindaura in reply to Cropcrop

You are very sweet, JANE.

Thanks for the kind words,

Many hugs,

Laura

shortfriend profile image
shortfriend

That is great news and you deserve many good things to feel well as you always reply to people when they are low or vulnerable. You are so reassuring and positive, you are an asset to this lovely group. I don't post often but read how people are getting on. I will be getting another scan in 2 weeks to see if my chemo has worked and I am fit for de=bulking (talk about being between a rock and a hard place! who celebrates being fit for a big op!!) As always I am grateful for your thoughtful and wise responses and am so glad you are such a strong force in this group. All the best for continuing to feel good. thank you.

love and big hugs

short friend (pat) xx

Lindaura profile image
Lindaura in reply to shortfriend

That was such a lovely letter. You sound very cheerful for someone about to have the big op!

I hope all goes well. Recovery can be slow, but don’t try to rush it.

I wish you all the best,

And hugs,

Laura

sticky3006 profile image
sticky3006

Great news! Glad all is going well. Keep up the good work,

sticky3006 x

Lindaura profile image
Lindaura in reply to sticky3006

Thank you.

Hope you are doing well, too.

Hugs,

Laura

cbulha profile image
cbulha

Very happy for you, Laura! Keep it up! Make the most of the summer that is coming and treat yourself as you deserve it! ;)Xx

Sending you much love from Portugal 💓

Lindaura profile image
Lindaura in reply to cbulha

Thanks, Claudia,

I hope you get your next chemo and I hope it destroys your nasty rare cancer.

Keep up the fight,

Hugs,

Laura

Katiebairdie profile image
Katiebairdie

Hello Laura

Everything is sounding fantastic for you. When I was on Niraparib I lost half a stone. I don’t know if that is normal.

I really hope everything carries on so well for you 🤞🤞🤞

Lindaura profile image
Lindaura in reply to Katiebairdie

I know it’s just vanity, but I was hoping to lose my appetite, but I seem to be hungrier than ever!

Oh well, at least I look as healthy as I feel.

Hope you are well, too.

Hugs,

Laura

Mptelesca profile image
Mptelesca

Laura, that is wonderful news!!! I am so happy for you. Isn't it great to just be able to exhale?! May you always continue this way!

XOX

Marisa

Lindaura profile image
Lindaura in reply to Mptelesca

Thanks so much, Marisa.

I feel great, but the worry is always there.

I wish we all could be free of it.

Hugs,

Laura

Mptelesca profile image
Mptelesca in reply to Lindaura

I hear you. That worry that just hangs there.....and then we move on.

Glad you are well!

XOX

Marisa

SCWI profile image
SCWI

What wonderful news Laura, I am delighted by it all, you are particularly lucky to have great blood results on Niraparib. keep it up xx

Lindaura profile image
Lindaura in reply to SCWI

Thank you.

I just hope this good luck keeps going.

Hope you are as well as can be,

Hugs,

Laura

Peg8080 profile image
Peg8080

Wonderful news Laura! I am so happy for you. Continue to enjoy your life. ❤️

Peggy xx

Lindaura profile image
Lindaura in reply to Peg8080

I shall, Peggy,

Taking a big bite out of the apple!

Hugs,

Laura ’

Peg8080 profile image
Peg8080 in reply to Lindaura

Love it! ❤️

Litchick profile image
Litchick

Hello Laura, its good to hear your wonderful news & I’m so pleased for you. I have noticed how supportive you are of other Teal sisters on here and I’m sure we are all wishing you continued good health. Go girl!

xx

Lindaura profile image
Lindaura in reply to Litchick

Thanks so much, Lit chick,

I have received so much support here and advice and guidance, also.

This forum has certainly been influential in my regaining my health.

Hope you are well.

Hugs,

Laura

delia2 profile image
delia2

That is fabulous news!! It really couldn't be better--except not getting OC in the first place! Long may it last!

Lindaura profile image
Lindaura in reply to delia2

Oh yes! Long may it last!

I hope you are doing well also.

Hugs,

Laura

gmc920 profile image
gmc920

I am so happy to hear this news, Laura! You are doing so well, and it’s great that you’re feeling like your old self 💕 I think that’s what we all are aiming for! 😊

xx Gina

Lindaura profile image
Lindaura in reply to gmc920

Dear Gina,

Thanks so much.

I just hope it lasts. It was so easy to forget myself and now I’m so glad to be back!

Hugs,

Laura

Seasun36-uk profile image
Seasun36-uk

So pleased for you Laura!! 💃🥂🔆

Lindaura profile image
Lindaura in reply to Seasun36-uk

Thank you,

Hugs🥰

Laura

Lewisriley47 profile image
Lewisriley47

That's great news may it continue for a very long time!

Lindaura profile image
Lindaura in reply to Lewisriley47

Yes yes! Continue it must.

Hugs,

Laura

Vicx1977 profile image
Vicx1977

Great news Laura! I hope you can have a lovely summer now getting back to your old self again, take care love Vickie x

Lindaura profile image
Lindaura in reply to Vicx1977

Thanks, Vickie.

Can’t believe it is summer again.

Time goes by so quickly when we are measuring our time with infusions or scans!

Hugs,

Laura

Vicx1977 profile image
Vicx1977 in reply to Lindaura

Hi Laura,

Its so good to hear your news as your story is so similar to my mum's and you give me lots of hope! Would you mind if I send you a pm so you can explain more about the niraparib as I'm trying to look at what's available to mum after her chemo finishes?

Take care and big hugs back!

Vickie x

Lindaura profile image
Lindaura in reply to Vicx1977

Sorry it took so long for me to get back to you, Vickie, I am feeling so well, I am about to expand my business again.

I had to cut it in half when I was so Ill, which meant I halved our income and have not made ends meet for almost 2 years! Gee, that long...

So, very happy to receive a private message from you.

Hugs,

Laura

Clar0805 profile image
Clar0805

Great news - long may it continue! X

Lindaura profile image
Lindaura in reply to Clar0805

That Clare,

It just better continue!

I am not going back!

Hugs,

Laura

ShropshireJo profile image
ShropshireJo

So pleased it’s working, Laura. I’m delighted for you. Love Jo 🌺🌼🌸🌻🌹

Lindaura profile image
Lindaura in reply to ShropshireJo

Dear Jo,

Thanks so much.

Like so many have wished, long May it continue!

Hugs,

Laura

BeeWild profile image
BeeWild

Great news Laura I am so so pleased for you and long may it continue xx

Love good news xx

Lindaura profile image
Lindaura in reply to BeeWild

Thanks so much.

I am just happy to be healthy for a while. It’s a great feeling!

Hugs,

Laura

Coldethyl profile image
Coldethyl

That all sounds v positive - enjoy it x

Lindaura profile image
Lindaura in reply to Coldethyl

I am, Ethyl,

It’s so delightful to be able to walk the dog without getting breathless.

What a change!

Hugs,

Lay

Neona profile image
Neona

Great news!

Lindaura profile image
Lindaura in reply to Neona

Thanks, Neona,

Good to get some good news once in a while.

Hugs,

Laura

19Mary profile image
19Mary

Great news! You're an inspiration to us all.

Best wishes

Mary

Hi

FANTASTIC news Laura. Really pleased and hope it continues for a long time.

I am waiting for Scan results again. Fingers crossed but feeling reasonably well.

The warmer weather and sunshine certainly help.

Best wishes

Janet

Lindaura profile image
Lindaura in reply to

Hi Jan,

I just hope that the Niraparib will keep us both stable.

By the way, I went back to taking an Omeprazole and a Cyclozine an hour before taking the Niraparib, just avert possible nausea which does come on now and then.

I take the PARP in the morning.

I keep Cyclizine and Omeprazole on me all the time.

But I mostly feel amazing.

Hope you will, too.

Hugs,

Laura

in reply to Lindaura

Hi Laura

I dropped omeprazole for rainitidine but still use cyclizine occasionally, especially if I am going out. Difficult choice cos feeling of nausea seems to be permanent

Enjoying the mild weather and getting out into the garden

App with Onc in two weeks for scan results.

Really glad you are feeling so well.

Long may it continue.

Very best wishes

Janet

Harrygirl profile image
Harrygirl

Such great news! And just in time for summer-yeah!

Soak up all the sunshine and gorgeous dog walking opportunities you can❣️

I am so happy for you!

Christine x

Lindaura profile image
Lindaura in reply to Harrygirl

Thanks, Christine,

You, too!

Hugs,

Laura

Pendle99 profile image
Pendle99

Hi Laura,

Am really pleased to hear you are doing so well on this. I see you are from Bath (same as me) so I guess you are under the care of Dr B. She said to me if I have a good response to Caelyx and Carbo then I could go on Niraparib at the end of the chemo. What did she class as a good response? I have had 4 out of 6 and am due my 5th round next Tuesday. I am seeing consultant tomorrow so I will ask about CA125 as so far it has just been stable (which Dr B has been happy with). Any advice really appreciated!

Pen

PS So pleased to hear that you feel like the old you xxx

Lindaura profile image
Lindaura in reply to Pendle99

Dear Pen,

I did not know you were in Bath! I would love to meet up if you are up to it.

I live in the centre.

I will private message you and you can think about it.

It’s a personal journey, but sharing the same Oncologist and the same disease is interesting.

Hugs,

Laura

Missmuffet32 profile image
Missmuffet32

Dear Laura

I am so happy for you that it’s working as I know it doesn’t for everyone. We are lucky that we’re responding to this part. You feel like a different person and alive. I’ve just been to New York with my lovely family and had a fabulous time making lovely memories spending quality time together. Never thought I’d be here this time last year. I’m sure you feel like a million dollars. All the very best wishes to you lovely lady 💐🌸🌞🌺 Margot 🙋

Wanthealth profile image
Wanthealth

That’s such exciting news so happy for you🤗 hope it all continues 🙏🏻 Hugs

Wanthealth profile image
Wanthealth

Good to hear congratulations 😉 I’m finishing second lune treatment with carbo/gemzar June 14 and then supposed to start on that or another parib .. hoping to have success and little side effects 🙏🏻 Always nice to know ladies doing well!! Thx for update ,, sue

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