Waiting for diagnosis and results

[Christie22]

So fed up of the wait I had surgery 17 days ago to remove ovaries Fallopian tubes and cystic mass which broke up insitu as it was attached to the mesentary and pelvic wall . I called my surgeons secretary last Friday my results have been reported I understand she cannot tell me but I asked for a phone call or letter my consultation isn't until next Wednesday ! The wait is agonising I just want to know arghhhhhhh

[Rachael47]

The sad truth is that waiting for results is agonising, and normal. Hope you get good news eventually.

[Christie22 in reply to Rachael47]

Thanks trying to be patient but not easy as my son is still recovering from leukaemia and stem cell transplant I don't want him any more stressed than need be ......

[Tesla_7US]

christie22, Be sure to request a hard copy of your pathology report. Also, if you haven't already asked, get a hard copy of the surgical report which details every single thing they did in surgery. Sometimes doctors leave out details that patients really ought to know. If you don't want details, then surgical report not necessary.

[Christie22]

Thanks useful tip , would there be more info on a surgical report than the discharge summary ?

[CJR99]

Chrissie bless you I really feel your pain I'm on day 19 and haven't heard a peep!I am so sorry you have so much to deal with at present.I will be thinking of you and praying it's good news for us both....It's such a tough time waiting for results you really do have to dig deep...

I do hope you are feeling a bit better physically...I've ended up with an internal infection but,hope the antibiotics will kick in soon🙏

Will be thinking of you take care Clare xx

[Cropcrop in reply to CJR99]

Hi Clare, I'm sorry you had an infection, I really hope the antibiotics do their job soon and you feel better. Fingers crossed for your results, let us know how you get on ❤️Xx Jane

[Christie22]

Ahh Claire thanks for taking the time to reply it's agony isn't it the wait sorry you've had an infection when is your consultation ?

[Cropcrop]

The waiting is awful, isn't it? But you'll soon know just what you're dealing with and any future plans. I hope you get good news, do let us know ❤️Xx Jane

[CJR99 in reply to Cropcrop]

Thank you so much you take care xx

[CJR99]

Christie please forgive me for crashing your post and thanks very kindly to you and Jane for your kind words😘

How amazing are the people on this forum,it gives you hope for humanity?!!

I've ended up with an infection I believe where my cervix used to live!It's quite common...had an internal/swab last night at the hospital,every woman's dream 3 weeks after a hysterectomy!I've got these super pellet style tablets to take for a week so hope to be feeling much better.It was quite funny because when the doctor examined me at the hospital she listed the surgery I'd had but,neglected to mention the fact they took my ovaries/tubes...I politely corrected her and felt very protective thinking that's the blooming reason I went through the whole thing!!!

No other news yet just waiting for the results.They did an omentum biopsy and peritoneal washings too so one can only pray.

Prayers are being said for you Christie and indeed all those other ladies waiting for a glimmer of light!Forgive the rambling, I love to chat!

Sun is blazing in Newcastle today,hope you have sunshine too☀️😘xxx

[Cropcrop in reply to CJR99]

If you love chatting and rambling you're in the right place, welcome to our gang ❤️😂Xx Jane

[caf132]

The waiting is awful! Your mind goes wild with what if's!! My surgical report took a long time to come in. My ONC said it was most likely a rare tumor and pieces of it had to be sent out to other labs for confirmation. It was, MMMT.

At least you have already had the surgery. in my case I could not wait to get that thing out of me!

Stay strong and take care of yourself in the meantime. Sending strength!

Xx Carol

[Christie22 in reply to caf132]

Thank you it's just driving me insane but I'll cope x

[devotedtolife55]

I waited approx 2 weeks to get my results. Like you my mass broke during surgery which meant I went from stage 1A to 1C for my Clear Cell, but there was nothing showing, in what they call the wash which they check immediately. I also have another cancer but am currently at 4.5 years (no evidence of disease) for the Clear Cell. Hope this gives you positive news to think about during the agonising wait.

[Christie22]

Appreciate you taking the time to message I am just tired worried and want to know , pleased to hear you appear to be doing reasonably well .