stage 1c mucinous adenocarcinoma of the ovary

[Emer1234]

I was diagnosed with stage 1c mucinous adenocarcinoma of the ovary in 2008 at the age of 22. It was 1c due to a spillage during my initial operation October 2008... I was closed up and believed it wasn’t cancer until Jan 2009 when they removed the omentum, appendix and lymphnodes on the left side of my abdomen. Leaving my uterus, right ovary and Fallopian tube.

I had intensive chemo *4 3-4 weeks apart. Carboplatin and taxol.

In 2016 I had a pre cancerous tumour very small and CIN 1 on my cervix. However I did not test positive for the HPV which is associated with abnormal cells of the cervix. However the consultant at the time said it was not related to my previous cancer...

My current consultant wants me to have a hysterectomy. However I am concerned as I have high blood pressure and rapid heart rate and I am on medication for both since the chemotherapy.

I can’t find clear stats on the reoccurrence rates etc online... can anyone help me with this? Or tell me if you’ve been in similar situations

Thanks,

Emer

[Petrolhead]

Hi Emer

I had 1C1 mucinous oc in 2016. Obviously did the research on stats etc for recurrence and prognosis.

As for every other type the stats are out of date. For our type even more so as it is one of the rarer ones. Also when a lot of these studies were done quite a few ladies were found to have bowel cancer. They had mistaken bowel cancer mets for primary mucinous oc. So this muddies the waters even more.

As always the most effective treatment seems to be surgery to physically remove stuff. However, with you heart problems it is a difficult choice.

There is no easy choice as the stats available on recurrence are not necessarily accurate. Recurrence from stage 1 is usually less but as has been said many times before we are all different and we are not a statistic.

I am sure I have not helped at all and better qualified medics that you are seeing will put the options to you.

Best of luck and let us know what you and your team decide.

Best wishes

Fay

[Emer1234 in reply to Petrolhead]

Thanks a million. It’s just that it is 10 years later with no signs of reoccurrence so I am not sure what to do but nobody can give me the stats...

[Purple-iris]

Hi Emer

So sorry to hear that you were diagnosed at such a young age and are now dealing with other health issues.

I was diagnosed with High grade but wanted to mention that you could ring Anna on the overcome helpline ( after Easter) to discuss your situation. She will be able to help with the latest stats, recommended protocols and also has access to their medical board for more complex enquires.

You may also want to consider getting a second opinion from another specialist to help you come to your decision and put your mind at rest re your medical conditions.

As Fay has posted we are all individuals, as our cancers and the stats don’t allow for this and are mostly out dated where available.

Best wishes and good luck with whatever you decide.

Kim x

[Emer1234 in reply to Purple-iris]

Thanks a million I will definitely do that. Hopefully they will be able to help

[Purple-iris in reply to Emer1234]

I’m sure it should help to have a chat with Anna and she will be able to help answer your questions or point you in the right direction. I’ve met her at Ovacome days and support groups and she is a wealth of knowledge. The most important thing is you have confidence in your team and whatever you decide moving forward.

Hope you’re able to enjoy this beautiful weather today Kx

[topeka]

It is almost always related recurrence. Get the hysterectomy ASAP!!! They know how quick this spreads to new locations. My cervix Tumor was fir me taking ALL out!!! Then I did treatment. That was 5 years ago. The Dr.’s know how to handle meds you’re on or what more you’d need to be well otherwise so everything else is fine. Please get it done ASAP!

[lynn6156]

I had mucinous 1c diagnosed last year - I was 56 and had been on high blood pressure meds for 10 years. I ended up with a 6 hour op to remove the tumour/omentum/uterus/tubes etc and had no bad effects on my blood pressure which they didn't seem all that concerned about. On the other hand I haven't any diagnosed heart problems but they can deal with that. Maybe a second opinion would help ...

Lynn

x

[sophieturgeon]

Hi, I sympathize with you, having cancer so early in life... Sometimes surgery is necessary. The laparoscopy, meds in case of infection and all the pre-op exam they do now a days reduce the risks of complications. A few years back, the recovery from such a surgery was much more difficult and complicated.

I would encourage you to speak about your fears with a health professional. I had the same fears and I met the whole surgery team a week prior to the surgery. I spent 1/2 day asking questions to nurses, anesthesiologist, surgeons, specialists for my other health issues. At the end, I was fine, I understood.

This is my personal experience going through a hysterectomy 2 years ago. Keep in mind everyone is different. At the time I had high blood pressure, tachycardia, diabetes, fibromyalgia obese type III, and other health issues. They did the surgery by laparoscopy. They removed almost everything, leaving me with only 1 ovary (right). The surgery lasted about 3-4 hours.

Everything went fine. 2 hours after waking up, I was walking up and down the corridor at the hospital and was released 36 hours later. Now, this is a big surgery, and you might be more tired than person without your health issues, so you will need to take the time to rest and heal. I know I was, but everything went very well, almost no pain for the first couple of days. Al I needed for the pain was tylenol, I didn't take the dilaudil. Now this was exceptional considering the Fibromyagia.

I hope this helps. I wish you all the best!