I am currently on 3rd line (2012/2015) chemo weekly paclitaxel. I had 2 lots of carboplatin before so never lost my hair and this time they told me I would so I decided to use the cold cap. I have had 9 sessions, 9 to go and haven't lost a strand as yet (touching wood as we speak). Also no side effects, I've even been a rebel and have coloured my hair as if it starts to look grey and not it's normal self then it's not worth it to me. I also wash and dry it pretty normally. I attach a pic of my friend and myself out for dinner last week - I'm the one in the patterned top, we had a lovely Thai meal 😊
Had my halfway scan results on Wednesday. Things are moving in the right direction my consultant told me. I had a blood test after 6 sessions and my ca125 was down from over 100 to 62 but haven't had my halfway blood test yet. He said it's a slow burner as I have low grade serous. The only question mark on my scan was when I initially had my scan at Christmas he said there was a small pocket of fluid by my liver which should go with chemo. He told me on Wednesday that this is now a bigger pocket of fluid but neither the radiologist nor him could see any cancer in it. He said if it's not causing me any discomfort to leave it alone and see what it's like at the end of treatment unless it gives me any problems in the meantime and he'll get it drained.
Although the news was mainly good I'm really worried about this fluid thing and potentially what it could mean?!! He said "read my lips, forget about it" but it's easier said than done. Anyone had anything similar?
I hope you're all looking forward to a nice bank holiday/easter weekend.
Jo xx 😃
Written by
Jo2305
To view profiles and participate in discussions please or .
Hello Jo, I had massive ascites (fluid) which I had drained twice before primary chemo started. Once chemo started the fluid did not come back. NED 8+ months. Fingers crossed. Tesla
Thanks Telsa, I had ascites before second line and I had 3.5 ltrs drained from my abdomen and it didn't return as had chemo but didn't get ascites this time although they say there's this pocket around my liver which is in a different place to my ascites last time. I can't feel it at all so guess that's why he won't do anything about it right now and I feel completely well. Just a bit worrying the fluid has got bigger x
Jo, I had fluid pocket at base of spine after surgery. It had potential to become infected. I ended up having a drain installed for nearly 6 weeks to siphon off the fluid. It worked!
Great photo; the cold cap has obviously worked as I couldn't tell who was having chemo from just looking and had to read on.
I don't know what the fluid might mean, can only suggest you keep aware of any possible discomfort or clothes feeling tight and report it. Hopefully it will disappear with more chemo.
Hurrah! Great news - from what I can see you still have eyebrows too. Hair looks amazing. My brush is pretty full everyday but otherwise I still have hair too. Can't help with the fluid, agree impossible not to worry about it. Nice to 'see' you - Nicola xx
Yes I still have my eyebrows and eyelashes as well! Still curling them and using mascara too!
Hope you are getting on ok with your treatment and cold cap, message me soon.
Thought you might like to finally 'see me' lol! This pic was taken just before my lovely best friend and her partner jetted off on a Caribbean cruise which my husband and I were booked on with them but we had to cancel because of my chemo 😕 I'm looking forward to seeing them to hear all about it and we hope to go in the new year all being well!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Cold cap advice?
Scan results
Scan results all good. 
