Oh so confusing ...my CA 125 has on four occasions , along with horrid ascites , have been absolute indicators of active disease . CA now 21 ...double the number since the summer ...and no fluid . New disease on scan has prompted Caelyx which shall commence in a fortnight . The thinking is that the cancer has changed metabolically and no longer registering in the same way . A shape shifter .
This will be fifth line and my fear is the uncertainty , of what drug after this (assuming it works for a bit ) . Not suitable for any trial ...have had the platignums,
Gemcitibane , Van den Burgh , taxol , now caelyx .
I am sturdy in body and healthy if not as fit as I was ...and lucky to be alive , I do feel that .
But know one seems to know what the next step might be ...feel very much at sea for first time in four years ....