Thought I would give another update on how I am getting on with the LOGS trial for recurrent low grade serous.
I had my first follow up last week. It was a bit of a stressful day as there were some problems in the lab so everyones bloods were being delayed and all appointments were running behind including mine.
I missed the time to take my medication and got really stressed about it. However apparently this was ok. All my blood tests were good and my CA125 was down by 133 and the lump on my hip is shrinking (even I can now tell its getting smaller).
I am having a few minor side effects I have had an outbreak of acne, my skin on my hands has become really dry and so has my belly button. My blood pressure has gone up and I have got to get my GP practice to do some follow up. My DDimer blood test came back positive last week so I had to go to the hospital for a doppler scan to make sure no DVTs. I am also getting a lot of mucus at the back of my throat and there is some crackling at the back of my throat when I breath in not sure this is connected to the trial as it was happening before.
There was also a query on my echocardiogram so I have to have this repeated in 4 weeks but my bowels seem to have settled down.
Oh I am feeling a bit fatigued as well. I had to hobble after a sakes assistant today and it quite wore me out ☹️