Back in my liver after 8 months post chemo. - My Ovacome

My Ovacome

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Back in my liver after 8 months post chemo.

Steghart profile image
16 Replies

Hello lovely ladies,

Feeling a bit down in the dumps as just been told it's back in my liver. Had not been expecting that at all, Oncologist assures me that she can make it go dormant again (her words) but would love some advice please, it hasn't gone anywhere else so I suppose that's something?

My fighting knickers are around my ankles just now :( Claire xxxxxx

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Steghart profile image
Steghart
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16 Replies
Choski profile image
Choski

Dear Claire

So sorry to read that you've had a bombshell piece of news- a lot to take in even with an optimistic oncologist.

I can't offer any advice about your liver but I'm sure you will get some replies.

I just wanted to say that our fighting knickers sometimes need new elastic or even to be thrown away and new ones brought. Mine are new too and I went for a bigger size so I cut the label out to keep their superpowers inside.

You need time to process so get out a piece of paper and when youre ready jot down your thoughts and questions.

Big hug to you

Clare xx🌻🌷⚘⚘

Steghart profile image
Steghart in reply to Choski

Wise advice as always! Still processing but have so much faith in my team which helps loads. Hope you are doing ok, will buy knickers immediately. How do you do the flowers on the reply, so pretty! xxxx

Choski profile image
Choski in reply to Steghart

Using my iPad which has a smiley face icon on the keyboard and when you hit that it gives lots of icons to choose instead of text such as faces, flowers, etc

Clare 👍🏻👍🏻

LesleyGreengran profile image
LesleyGreengran

Sorry to hear that. I've had a couple of patches on my liver for some time now. They shrink with treatment but never quite go away. I hope there's some effective chemo for you out there x

Steghart profile image
Steghart in reply to LesleyGreengran

thank you xxx

Caroles1 profile image
Caroles1

Oh Claire,

Please pull them up! 😳We all get days like these,but have no choice but to swap them for big girls fight pants. 😬The good news it is contained and if your onc says she can make it go dormant then she has faith in you and you have to absorb that and go with the plan.

I'm sure you will have re grouped by the time you get this,you can do it,cos you can!😀👍

Keep in touch and let us know how you get on,

Carole xxx

Steghart profile image
Steghart in reply to Caroles1

Being pulled up this morning! A good nights sleep helps a lot. I'm going to walk my doggie which helps keep me calm more than anything.

Thank u

Claire xxx

Purple-iris profile image
Purple-iris

So sorry that you have had this unexpected news this disease is so cruel . Try and stay strong and focus on the fact that your oncologist has said she can treat it .

Sending love and best wishes for your future treatment

Love Kim x

maz54 profile image
maz54

Good morning Claire - I was exactly the same - the beast returned 8 months post chemo on my liver. That was 2 years ago and yes - I've 3 months out of finishing 3rd line treatment but still here and enjoying life.

It's always a shock to hear this beast is marching again but believe me - you will yank those pants up and find the strength to do this again - we're an incredible strong band of ladies and you'll be with us banging the drum to beat this! !!

Sending you lots of love and positivity x

Love Maz 💞💞💞💗

Steghart profile image
Steghart in reply to maz54

Thank you Maz, just had to tell my kids which was horrid, going to think of some nice stuff to do after next round in the ring! In pain but liquid morphine helping xxx

Kim1958 profile image
Kim1958 in reply to maz54

Love what you wrote here! Inspirational!! Kim xo

Kim1958 profile image
Kim1958 in reply to Kim1958

That message was for Maz. So sorry to hear you are in pain Steghart and can only imagine how awful it was to tell your kids!! Kim xo

Steghart profile image
Steghart

As usual ladies you made me smile and give myself a hefty kick up the backside!! Thank you, if only World leaders could behave this way xxxx

maz54 profile image
maz54

Hear you on that one Claire! ! The main thing I hate about this disease is having to tell your loved ones it's back - I so remember the awful time I had telling my then 20 year old daughter I was having to have chemo again - Justin Timberlakes Cry me a River had nothing on the pair of us! !

I felt a total failure and that I'd let everyone down - totally bloody irrational but the guilt I went through at having to put her and my poor hubby through it again was immense; tbh not sure it ever truly leaves us!

Please check in to let us know how you're doing xxxx

Hertsmum profile image
Hertsmum

So sorry you've had this shock Claire, this b****r of an illness is so sneaky and cruel. Hope you've got the knickers firmly back in place now!! your oncologist sounds really positive so that's half the battle. I've got some patches on surface of liver and other spots here and there, it is so strange to think they are there yet I look relatively normal on healthy on the outside! Currently having avastin and oral chemo tablets and awaiting next scan in a couple of weeks to see if it's stable. My ca125 has gone down to 19 so I just hope that it is still reliable!! It is so so hard telling the children whatever age they are, but they are more resilient than we think. Do you know what treatment you will be having?

Keep on keeping on !

Love, Madeline xx

Sassysal profile image
Sassysal

My ovarian cancer returned in my liver also. Here in the U.S. There is a procedure called y90, where they insert radioactive beads directly into the tumors. I had it, and my cancer has already shrunk. Another treatment is liver ablation, where they "microwave" the tumor. I'm not through fighting, as I'm sure you're not. I would discuss these procedures with your oncologist. Good luck, and keep us abreast of what you find out. Sally

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