My diagnosis

My names leianne I'm 29 years old and had a cyst on my ovaries or so they thought, I had an op to take out the cyst my fallopian type, left ovary, amentum and appendix. A week later they diagnoses me with stage 3b mucinous ovarian cancer :(. I've had more tests and been to the Royal Marston hospital, I know have another op booked on 26th sept for a total hysterectomy and then I have to have a course of chemo. I'm still trying to process it all :(

21 Replies

  • It hits you like a freight train and you seem to be hanging on for dear life... It does get easier .... The wonderful ladies on here are amazing with support and advice second to non... Sorry that you had to join us but glad you found ovacom welcome... Best of luck for your next op and your chemo treatment... Big hugs ❤️❤️

  • Hi yer it does and thankyou for replying x

  • Hi there Leianne. .. 29 is a very young age to have to cope with this.

    There is a joint charity leaflet on the specific problems younger women face.

    Here's the link :

    Sending love and hugs.

    Sue xxx

  • Hi sue I know it is I'm finding it hard to accept as I havnt had the pleasure of having my own kids. Thanks for that link but it's not on there or I can't see it xx

  • Go to here ..

    There are some things you might identify with. I know what you're going through is very hard .. Xx

  • Leianne7, can they harvest your eggs and freeze them for future invitro fertilization? You could even use a surrogate to birth them if needed. My neighbor did this years ago. Her daughter is now 8 years old! Tesla

  • Leanne

    I'm sorry you are having to deal with this. It's bad at any age but at your young 29 it must feel really tough. What many of us here on this forum have found, tho, is that we are here for each other, we can all deal with far more than we thought possible, and more than anyone should have to. Everyone's experience is different but I have found some good stuff in among it all. Take it slowly, accept all help you think is really helpful and be kind to yourself. Someone is always here. All the very best to you.


  • Oh leianne what an awful shock 😔

    I've recently been through the same op (on right side) but diagnosed as 1a mucinous OC...I'm 33.

    You have my utmost sympathy for your upcoming op & treatment. But you sound like a strong, young woman.

    This group of women here are just amazing. I hope you find it helps you in the months to come.

    You are in my thoughts.

    Jemima xx

  • Hi Leianne,

    I'm a bit older than you at 38, but I can relate to how you feel about having to process the news. I'm also stage 3, but with serous OC. It is the most horrible and frightening place to be when you are first diagnosed, but in the not too distant future you will feel more positive about what's to come and be able to focus on getting better. From what I have read, the Royal Marston is supposed to be a very good hospital for OC, so I'm sure you will be in very good hands.

    We're all here to listen and offer advice when we can.

    Yoshbosh x

  • You are so young to go through this Leianne... My heart goes out to you.. But youth is on your side and believe me you will get through this...I was diagnosed with OC four + Years ago with no recurrences... Good luck honey

    Love Luanna xx

  • Leianne,

    Welcome to the board you have already found and will continue to find much wisdom on this forum! I am truly sorry you find yourself in this position and the period after initial diagnosis is so hard! As others have said you will find that as time moves on and your medical team put a plan in place you will find it easier!

    You are young to be dealing with this and the others closer to your age will help.

    Again welcome and I hope you will find this forum some help as you navigate this difficult journey!

    Take Care and the very best of luck with everything!


  • Really sorry that you are having to deal with this and so young. It's a rollercoaster I know. Get as much support as you can. Macmillan nurses can be v helpful and the Penny Brohn cancer centre in Bristol is excellent for different types of support and advice.

    I've survived 12 years with this illness although it has reopened a number of times and I've had a lot of treatment over also been able to live life fully much of the time.

    I'm glad you've found this forum

    Francesca x

  • Hi thankyou I'm beginning to accept it know as much as I don't want to. I'm sorry to hear about ur battle aswell x

  • Oh dear, I am really sorry that you have become a member of this forum. Yes, it is disastrous at any age to be diagnosed with this cancer. You are too young for that, so I hope you won't have to deal with this on your own. What I could learn from this forum is that women can live with this disease for many years. Cheer up and things will really get better once you have accepted and got used to the idea. I have been living with it for about two years and I consider myself normal with two jobs and lots of private activity. Best wishes to you, dear.

  • Dear Leianne. This is so much for you to take in but the Royal marsden is a wonderful hospital. Have they given you a cancer nurse specialist? I met mine and have since called or emailed her when ever I have questions (I prefer to do this and spend as little time in hospital).

    If you have always planned to have a family and wanted children then I think it's important that you have a conversation about fertility/ egg freezing now. Then you can decide what route you want to go down. But these are your choices and the hospital need to advise you well to help you come to a decision.

    I'm glad you found this site and hope we can help.

    Love, T.x

  • Hi I have gone into egg freezing but they can't guarantee my other ovary isn't infected and for the little percentage I decided to just go ahead with treatment and then adopt later, I know it will affect me more once I've had the historectomy but I will learn to deal with it, I'm glad I found this site aswell. I do have a cancer nurse yer she's helped me a lot :)

    I'm having my treatment down back in Southend hospital so I don't have to travel to London while having chemo xx

  • Hi Leianne,

    You are the same age as my daughter and she had a scare about a cyst on her ovary,after me we have all been really knocked for 6.

    The worst time for you is now,things get much better once a plan is in place and trust me,I never thought I'd be able to deal with it,but it's surprising how the strength comes from within.

    It's good that you can have your treatment locally as I have had to go to London for all mine and that is exhausting.

    I really hope that things look up for you and I wish you well for your future


  • Hi thank you I think the worse bit is knowing that I have cancer at such a young age. Hope you and your daughter are doing better now x

  • We are both well love and so will you be xxx

  • It is hard to take it all in. I hope your treatment is successful x

  • Hi leianne,

    I am new on here as of today, was reading your post!!

    I was 27 when I first got diagnosed with ovarian cancer!! I have had a full hysterectomy and have no children. That was the hardest thing for me to come to terms with, but it does get easier I promise!

    I am just about to go in for my 2nd de bulking and a liver resection operation next week. This is the 3rd time it's come back for me.


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