Newbie

I had a few questions and thought this may be the place for answers. First let me start by introducing myself. I am 43 I have been diagnosed with autoimmune progesterone dermatitis. Basically I am allergic to my own hormones. My mother passed with ovarian cancer 13 years ago. I am scheduled for surgery to remove my ovaries and fallopian tubes in March. I was wondering if anyone knows the benefits of leaving the uterus? I am scheduled for laparoscopy surgery and was wondering what to expect from recovery? This APD that I have is very rare so finding information on it is really hard. None of my many DR's have ever seen or treated it. I am sorry if I am asking on wrong site. And as of right now I am in medical menopause from lupron injection. Thanks for reading.

2 Replies

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  • Hi Missy sorry you have to post, this site is a site for Ovarian Cancer perhaps if you search Health Unlocked again you might find the site which is best for you, As regards the removal of your uterus etc, it would be best to get medical advice. I really dont know where to direct you but perhaps your medical team can give you further information when they have it. Any surgery takes time to recover from, be it incisional or laparoscopy, so you need to organise your household and friends to help you out after surgery as in school runs and shopping and housework, I hope one of your team may see your case as interesting and do research and get back to you on it.

  • Hello Missyc,

    This is the ovarian cancer section within HealthUnlocked so this site may help. My only suggestion is to ring the Ovacome Helpline Freephone on 0800 008 7054 which is 'open' again on Tues Jan 3rd.

    In the meantime their website may have useful information. There is a section on Types of Ovarian Cancer so I wonder if there could be a mention of yours in the 'rare'ones - just a thought?

    In the back of my mind is a thought lurking that research is being done on the value of preventative removal of fallopian tubes - just 'Googled it and "bilateral salpingo-oophorectomy, which is the removal of both ovaries and fallopian tubes, for women with a high risk of ovarian and fallopian tube cancer." came up.

    In the meantime, someone else on this site may have experienced your situation and hopefully they will read your post and reply.

    Warm wishes and good luck,

    Lesley

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