in remission: I am so happy to be in remission... - My Ovacome

My Ovacome

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in remission

horn59 profile image
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I am so happy to be in remission after 1 1/2 years of debilitating chemo. It has been 11 months now, and I am on Avastin every 3 weeks. I am hoping this will be permanent, but one just never knows. I am new to this community!

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horn59
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Lyndy profile image
Lyndy

Hi horn59

Welcome and well done for getting to remission- sounds like you've had quite a time of it.

Please feel free to share your experience or ask anything on here- there are lots of wise ladies on this forum and we all try to support each other.

Best wishes Lyndall x

Welcome to the site and I am glad you found us. It seems you had a battle on your hands to get to remission with a long treatment but now you are out the other side. I wish you the best for the future. No doubt you will feel a bit lost not having regular trips to the hospital but perhaps you can find a Cancer Support Centre near you which will guide you along, I also hope you have a supportive gp to talk to if you are worried about anything at all and of course the ladies on here are extremely kind and helpful all the times.

Katmal-UK profile image
Katmal-UK

Hi and welcome to our friendly supportive forum. So glad to hear your in remission and long may it coninue xx Kathy

Caroles1 profile image
Caroles1

Hi

Glad you are out the other side,we all support each other here and there is always someone with advice or who is going what you are.

Suzuki is right it would be good to have a support centre near you for classes and moral support if you need it and there is a nurse on this site also.

Just take it easy,listen to any advice given and take any support also,we wish you all the best and the ladies are always here,

Carole xxx

Hi there. I've been in my 2nd remission for 18 months. I went onto Avastin when I began my 6 months of chemo for my recurrence (so was having 3 drugs thru infusion for that 6 months). When the chemo had got me into my remission, I continued with Avastin 3-weekly and it's still working for me. You'll hear of mixed results/reactions but I want you to know that I've found it to be very "user-friendly". It can raise your blood pressure a bit (your blood pressure must be low to be on the trial), so I have to take 1/2 tablet per day. Even after 2 years, the worst side effects I get is - on the same day as the infusion, I could feel very tired or just a bit queezy and I have a permanently runny nose - but that's it - not like chemo. I've read here that some oncs only put their patients on Avastin for 6 months but my arrangement is that I'm on it for as long as it continues to work for me i.e. if my CA125 rises or my 3-monthly scans show growing tumours, then I have to go off it. I hope your story will be as good as mine. Best wishes Pauline.

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