Caelyx next

Hello

I seem to be platinum resistant now. Having reacted to carboplatin and having had 6 rounds of cisplatin, I am to start caelyx next week. So any experience or advice would be useful. I did read up on it a while ago and it seems that some women sail through with few effects while some have severe side effects. I have had bad nausea with other chemo regimes so I'll be surprised if I don't get that but who knows ? The others have been platinum based and this is different so I may be lucky.

I was very low when I found that after the horrors of cisplatin and shrinkage at midway it had started growing again and is now on my liver. But then I received a reminder of my holiday - a certificate for a mammal identification weekend that I did in the middle, in Scotland, and I got a distinction. In was ridiculously pleased, it's only a basic course but I did enjoy it, and the rest of my holiday.

3 Replies

oldestnewest
  • Hi

    For me this was the best one I have had and led a normal life, I had Caelyx and Carboplatin together and managed to do DIY such as building new decking on my own and also a large arbour in the garden amongst other things. I felt great but this year I am on Gemzar and feel rough but am managing to survive and my tumours are stable and have been since March but I am on a high dose of it. I keep positive all the time because I feel this is the only way to try and beat this enemy for as long as I can. I have been stage 4 from the beginning over two and a half years ago and will keep going as long as I can.

    Hope this helps and you do not have any side effects but we are all different and congratulations on your certificate.

    Keep smiling and a big hug.

    Barbara

  • Thank you that's just what I need now, hope that it'll be ok this time. And I'm extremely impressed by your DIY skills.

  • Hi. I was on Caelyx on the first cycle I did have nausea which was soon sorted out with stronger antisicknes, I had skin discolouration to. I went about my normal day and carried on working et. There are llots of women on here who had good results from Caelyx so good luck xx

You may also like...