Am I befuddled by four years of chemo ? Or does the rule book keep changing , unbeknown to us ? ( NICE recommendations apart ) .
When I started this " journey " , I was told clearly , in the presence of witnesses , that platinum could be used after six months...over the first two years , this was off repeated , but then was subtly changed in conversation to , ' no, outside of a year '... Now , about to start fifth line , this time Caelyx : come March , I will have been away from platinum two years (Cisplatin )... And the assumption is that I am platinum resistant ...so after Caelyx , what ? I say assumption , because although I understand , in principle , that the cancer outwits the chemo ...and we are doing a dance to side step to outwit the buggers , how do " they " know , without a) a biopsy ,or b ) trying , that the cells are indeed , platinum resistant ?
Might there be a variety of cells dancing about ?
Has anyone gone back to platinum after a break from it of some years .
In my case , Recurring is a bit of a misnomer...partial response each time , knocking out smudges whilst other smudges appear ...remission doesn't apply either , because it is always there , just being held back , quite successfully . By this I mean , not in major organs , no bowel issues , general health OK given all that's been thrown at me ...dire joint problems / I creak !!!
So , any thoughts on the platinum issue ?
What don't I get get ?
Best wishes ,