GEMOX it will be...

[vmichel]

Hi everyone,

Just back from my appointment for the TEP scan results. It's just what I suspected (CA125 at around 230) : nodes everywhere... The oncologist asked the radiologists whether they could treat me by radiation, but it was a big NO - too many nodes in too many places, including in the neck. As weekly Taxol caused tinnitus, they had a hard time trying to find out something that wouldn't worsen the symptoms, so GEMOX it will be: Gemcitabine and oxaliplatin, every two weeks (around 6 hours). It will apparently come with nausea, fatigue and sensitivity to cold. Did anyone of you got that treatment?

Thanks!

Véronique

[vmichel]

And forgot: the oncologist sent samples from the surgery I had 2 years ago for analysis to see if the cells mutated to BRCA - apparently 20% of people who are BRCA- in their blood have this mutation in the cancerous cells. So will see, "hope" it will come back positive to be able to get Olaparib. Will have to wait 2 months to get the results.

[trix70]

Hi, my husband had oxaliplatin for his first treatment for bowel cancer, this is the first time I have heard of it for Ovarian.

Regarding the testing, I have been hoping to get this done but my op was 5 and a half years ago, but with breast and prostrate in the family I have been hoping that I have mutated. theres a thing to wish for.

Best wishes for your treatment. x

[vmichel in reply to trix70]

Hi Trix,

Thanks for your answer. You could ask for a biopsy then, not a pleasure, but...

I wish you all the best for your appointment in London!

Véronique

[trix70 in reply to vmichel]

Thanks, not sure how I feel about them digging around, there are tests now they can do by the blood, new stuff. But I wll be asking. x

[Mslmsmc]

A bit of track. I was diagnosed 3/16 diagnosed with primary peritoneal. Surgery right away - hysterectomy, remove appendix to determine primary site, debulking. Stage 4, metasticized to lung and lymph nodes. Started Chemo less than one week after surgery, same as OC most common combo, don't remember names. My CA125 started at 1800, down to ~600 after 2 treatments, down to 375 after 4 treatments. But these numbers still seem way higher than any i see on here. It's that bad overall? I don't really understand any of this and either I'm not asking the right questions (they never really tell me anything since they made it sound really bad to my family after surgery but now don't tell me anything and seem to dance around my questions. I am graduate degree educated so i think my questions can't be that badly worded. It's like they don't want to be held to anything they may say or already said. ) 4 of 6 chemos done. Said not planning to do any additional ct or other scan after. Where can i go here to get advice from other PPC people? All posts seem to be 3 years old or older for that.