Steroid damage to hip.: Hello all. I just thought... - My Ovacome

My Ovacome

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Steroid damage to hip.

gina profile image
gina
6 Replies

Hello all.

I just thought you would be interested to hear what has happened to me.

I have just found out after having pain in my left hip/buttock area for about 5 weeks

the MRI I had at the Royal Marsden where I have been having treatment for OC for the last 4 years

shows that I have developed avascular necrosis in the hip. This is caused by the steroids I was given

(most of us have these) to help with the sickness after chemo. It is a rare thing that can happen in the hip

or the jaw where the blood supply stops to the bone and the bone dies.

it means that I need an op to have a hip replacement!

Has this happened to anyone else?

Georgie x

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gina profile image
gina
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6 Replies

HI Georgie, sorry to hear you are in trouble. Thanks for the information, I hadnt realised it either. I was told by my dentist that the jaw bone softens and your teeth may loose. I get pain in that area from time to time since my first recurrence. However I never got to the end of it because I was back on treatment. Now that I am drug free, I intend to visit my gp with a view to getting a dexa scan. Best wishes with your op

Georgie, so sorry this has happened to you. I was too scared to take these tablets after reading the side effects and was lucky enough not to suffer with sickness. Hope all goes well for you.

best wishes

Asma x

lesleysage profile image
lesleysage

Hello Georgie,

I've not had this side effect but did have development of cataracts in both eyes within a year of my second full chemo of carboplatin + taxol (one as standard regime and second as dose-dense) so both lenses were replaced. Also have knee ligament weakness permanently and patches of thinning skin on my eyelids and sensitive places which could have been as a result of the chemo. Thanks for the warning about the hip.

Good luck with the hip op. Warm wishes, Lesley

caz54 profile image
caz54

Hi Gina,

I have osteoarthritis, and have had both hips replaced over the last 3 years. I was beginning to be able to walk without pain, then I was diagnosed with stage 4 OC. I have had first line of chemo, which I finished in April, and am now on Avastin. I have terrible pain again in my groin and front of leg, which is what I had when diagnosed with osteoarthritis. Im wondering whether this is what has happened to me. I will speak to the oncologist next time I see her. Up to now I have been told it is side effects from chemo, maybe it is the steroids!

Thanks for the info

Caz x

gina profile image
gina

Hi Caz.It may be worth the mention but as you have replacement hips I would like to think it unlikely. I just think I have been really unlucky.

So many drugs have such different side affects . I cannot fault the treatment I have had at the marvellous Marsden and it certainly isn't their fault. The surgeon has decided to do a core decompression op which involves some drilling!.

oh eer! I am glad I have finished my Christmas shopping .

best wishes to all the lovely ladies on this wonderful site.

Georgiex

linderruth profile image
linderruth

On another note, just wanted to tell you that I had a hip replacement 3 years ago and it was not bad at all--WELL worth the relief.

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