Scared of Ovarian cancer

Hello everyone,

I am a 32 year old mother of 2 boys ages 6 and 8, no history of ovarian cysts or gastro problems. For the last almost 2 weeks I have been having low back pain, hip pain and intermittent pelvic cramping (a few times a day). I literally just woke up one day with back pain. It is a bit better now but still there. Went to GP last Friday, had hip and tailbone X rays, full blood working including ca125. All results have come back normal (ca125 was 16) .At this point all the GP is offering is physical therapy (they gave me naproxen and flexeril for pain). I am terrified this could be ovarian cancer. I don't have a family history of cancer. Should I push for an ultrasound? Or wait to see if it gets better? I'm very scared. Thank you so much for any and all advice!

9 Replies

  • Hello Rockmama,

    You have come to the right place for information and support. I was very concerned I may have ovarian cancer after a ultrasound scan spotted a complex mass. It turned out to be fibroids. I understand your fear.

    There are two things you can do, the first is to complete the symptom checker on this site so you have some thing written down to show the GP. I think it is reasonable to ask for a ultrasound just to see if you have fibroids or simple cysts. The symptoms of OC are vague and mimic other harmless conditions so try not to worry too much. My CA125 was 16 and my fibroids were picked up by scans. Do you have any changes in your periods? Any urinary problem such as needing to pass urine frequently? or changes in your bowel? I presume your GP asked you these questions?

    I wish you well and let us know how you get on

  • Thank you so much for your response! No period changes or bowel changes. I thought I might be urinating more often, it was hard to tell because I don't have any urgency issues. The GP did test for UTI which was negative. I also drink between 2 and 3 liters of water a day so that may be the cause of the urination I suppose. I am going to make an appointment for ultrasound, hoping that will give me peace of mind. Thank you for your kindness :)

  • I wish you all the best.

  • It doesn't sound like you have all the key symptoms for it so there is a very high chance it isn't OC but it is really good that you have become concerned and aware of the symptoms rather than just leave it completely unaware which happened to my family. I would certainly push for an ultrasound, it will be piece of mind for you and is worth every check in the world to make sure you have checked it out from every angle. Your doctors will likely say you don't need it as they try and save time and money! Defo get one booked in, your better to be safe in my eyes. My mum was only sent for a scan 2 months after having symptoms which proves how much they just dismiss people.

    Good luck and try not to worry as there are so many other things it could be that are easy to get sorted. the CA125 is the main thing that usually rises so does sound very promising that it isnt it xxxxx

  • Thank you so much for the reassurance, I greatly appreciate it! I'm so sorry your mums scan was delayed, Doctors can be so frustrating. I will def be going for a scan, I need answers and peace of mind. Thank you again, sending you all my best.

  • Hi Rockmama,

    All good advice given by the others,I too would push for an ultrasound for peace of mind.

    I had severe bloating and couldn't eat as I felt very full,lost loads of weight,I had no pain at all,but kept being sick and my Ca125 was sky high.Your symptoms could be loads of other things ,if things take a turn for the worse you could always take yourself to A and E where you will get immediate treatment.

    I think it's really good you are on top of things,it's important not to get fobbed off,stay strong and I really hope things go well for you


  • Thank you for the advice and sharing your story. I am grateful that we have a very good A & E nearby if things get bad. Sending you well wishes xox

  • Thanks Rockmama of 2

    Meant to say also,don't be scared,I have been cancer free for a year and learnt today that my type of cancer isn't genetic,so kids ok my main fear.Not all doom and gloom.

    I hope all is ok for you,let us know how you get on,

    Stay strong xx

  • Hi seriously I could have written your post! It is so easy to think the worst. I spent 2 weeks worrying myself sick before referral under cancer pathway to gynae. 90% fibroids. CA count is a really good indicator so take some comfort in this. I had an ultra sound and you should push for this but with the caveat that sometimes ovaries can't be seen on ultrasound. Ovarian cancer, uterine cancer, fibroids and any condition affecting the line of the womb along with perimenopause ALL have the same symptoms and it's easy to self diagnose on the Internet and think the worst. Be positive. Be prepared with a list of questions and yes push for the ultrasound. Good luck x

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