I had a borderline tumour on one ovary removed at the start of the year along with the ovary and tube (unilateral salpingo oopherectomy). I then had a follow up scan which showed a tumour on my other ovary (it wasn't there when I had the first operation). Following that I had a laparoscopy to fully stage and biopsy everything. It looks like I have a second borderline tumour starting on my other ovary. The abnormal cells only showed up on one slide so really small right now.
I am going back to see the surgeon again to confirm as he has asked for a second opinion on it, but he is suggesting if confirmed, extensive surgery in the form of a midline TAH, omentectomy, appendectomy and the removal of various other things I never knew I had. 7-10 days in hospital and three months off work.
I have two questions. One is is this standard protocol for Stage 1b borderline tumours? Has anyone else had this or is there an option to be less aggressive and just, for example take out the ovary? i just don't want to do the radical surgery and recovery time if it's not really really necessary. Have any of you been treated like this for a second borderline tumour or been offered alternatives?
Secondly, those of you with borderline tumours. How do you describe it to your friends/family? It's a tumour, but it's not cancer, but then it's not quite benign and I don't want people to overrate it or underrate it either. I tend to say just tumour and not use the word cancer, but then everyone assumes I have cancer though no-one much likes to use that word! I don't then know what to say and I don't want to launch into a long explanation. How about an 'odd form of tumour that isn't malignant, but it isn't exactly benign either?'. What have you used that works?