Hello to Everyone
This is my first post. I have Stage4 OVCA, presented with a pleural effusion April 2014. Was told inoperable. Started with Carbo/Taxol plus Avastin. After 3 cycles told tumour (17cm on diagnosis) had shrunk sufficiently for de-bulking surgery which was done in Sept 2014. Frontline Carbo/Taxol finished November and Avastin is due to continue until September (18 cycles). After which nothing except monitoring. Having visited Inspire I have come to realise that in the USA many patients continue on Avastin indefinitely until it stops working or side effects become intolerable, because, as i understand it, post Avastin the cancer can recur even more aggressively. I ventured to explore this difference with my oncologist at my last appointment and he was very sniffy, saying that in the UK we do not follow US trials and determine protocols based on UK trials only.
I am, perhaps not surprisingly, rather alarmed about what might happen after Sept. I am doing well at the moment. Last CA125 was 10 and CT scan clear but now fear that it will re-rear its ugly head when the Avastin stops.
So my question is - what should I do? I know the Cancer Drugs Fund will not fund any more frontline Avastin and I will not be eligible for it if I recur as I had it as a frontline treatment. Do I sell my house to fund its' continuance privately. Or am I likely to be OK?
Any advice gratefully received.