Since I finished chemotherapy last year my CA125 has been increasing and CT scans are showing signs of progression. I have a small lump on my tummy which is one of my cancer nodules. I have been on letrozole for 10 weeks but my pain is increasing and yesterday whilst in the supermarket buying my weekly shop I felt dreadful really tired and clammy - I have not felt like that in ages.
I am back in clinic on 10 April if my CA125 is up then I will be starting chemotherapy. Letter to my GP from the doc I last saw in clinic has suggested single agent carboplatin. I have had carboplatin twice before so this time I was expecting something else. I want to try something else as well I was thinking of weekly taxol but I am anxious about the side effects. However I would really like to either stabilise my disease or even better some sort of remission.
I have low grade disease and weekly taxol is one of the alternative treatments on the recent clinical trials for Mek inhibitors. I tried to get onto the milo study last year but was told my nodules were too small. Many doctors have told me to view this as a good thing I know they want me to remain positive but in my mind having small nodules doesnt stop them from growing or making me feel ill.
I recently also found out that another reason I did not get accepted onto the study was because the study team felt that after reviewing my original tumour they felt it didn't fit the profile of low grade disease. I don't know what this means I only know that the hospital where I was getting my treatment are adament that it is low grade and I also had a second opinion that confirmed my original diagnosis.
I would like to hear about anyones experiences with weekly taxol.