Hello all and today expecially ladies on Olaparib.
Sorry for writing but I just needed to.
2 weeks ago on Monday I got high fever and horrible muscle and headache. I was absolutely sure that it was flu and I went to bed straight away. On Tuesday I didn't feel any better and couldn't keep temp on the control. Was 39.6. On Wednesday I rang to my nurse and she ask me to go to E&R immediately. They gave me separate room, tested for sepsis, viral and bacterial infections. The blood wasn't great. White cells were just a little under 1 (0.9), but doctor said it was "dangerous low and I could die". They only improved after 3 days in hospital after taking antibiotics and liquids.
I am still pretty sure it was a flu but my oncologist thinks it was because olaparib because the all tests they did came negative. So I left hospital last Wednesday and I had appointment today. The bloods were fine, white cells 2,6, platelets and everything else were fine as well. But my doctor said she needs to cut my olaparib dose for half as this is what protocol says and I will never come back to higher dose. So I was on 600mg (start dose is 800mg) and now I am on 300mg.
Additionally I had a ct scan last week as well. Is described as stable but... Ct scan in June showed 3 changes that were still there after second line chemo. Those 3 nodules grew since June's scan. They only grew 2 milimiters each and all of them smaller than 1cm. Ca125 last week was 8. Doctor couldn't say are those are active cancer cells or some more scaring or lisions.
I am so so devastated. It's not something that I was expecting to hear today. I'm worried that maybe cancer is there but is growing slowly because of olaparib. Now with the much smaller dose of olaparib cancer can start to grow faster.
I am worried that olaparib maybe stops working for me. If I will get again some Infection like last time...then that will be my finish with olaparib. And if they are active cancer cells in my body even when I'm taking olaparib only 6 months now what's gonna happen if I stop to take it at all. It looks that my cancer doesn't waste his time and will hit me hardly again.
I am not ready for second recurrence, I am not ready for another chemo. The second line chemo was so so tough.
Don't know what to think, don't know what to do. I think I feel worse last few days but I thought this is because the stress from hospital. Today since I'm back from hospital my abdomen is killing me, not sure is it a stress or something is going on...
Did any of you had similar infection? Or white cells problem? Or olaparib dose reduced?
I'm so sorry for such a long message, I'm just freaking out
Hugs, Zaneta xx