Feeling a lot better since coming out of hospital in May.My bloods have continued to rise so hopefully they will be good on Thurs when I meet Oncologist.I have more energy,went to the beach today and walked 2 miles! It was a glorious day.I no longer need sleeping tablet as I'm getting 6 hrs straight sleep at night and a nap during the day.The fatigue is caused by the tablets,but I'm not complaining.Ive still got appetite and drink approx 3ltrs of water everyday.Bowels can play up sometimes but I've only needed laxative 3 times since January which is great.All in all,so far so good.
Wrote letter to minister of health regarding chaos in A&E at one of Corks Hospital.I admit my letter was full of sarcasm and innuendo but the reply I got back from him was a doozy!! Thanking me for praising the hospital,treatment etc and wishing my hubby and myself all the best in the future! So thought he A didn't read the letter B,read it and misunderstood it,C, he was being sarcastic back.I replied politely to his email but heard nothing back,so took bull by horns and sent all correspondence to local radio.Minister was contacted and he rang me to apologise,which I accepted but I did mention the lack of out of hrs oncology,the fear of going through A&E and the time it's taken to licence cancer drugs! The protocol in his office is,any correspondence in relation to the HSE is passed onto them,so I'm afraid they will not be a follow up. I'm holding an ABBA/70s night in town on the 22nd,part of my bucket list and I will be raising funds for Ovacare.