Ladies,. Was so glad to be given a weekly drug that didn't seem to wipe me out. Well, week 3 of first cycle and I regret those words. I was getting more & more tired and even had a duvet morning yesterday - put it down to cold weather etc......am I stupid.
In today for treatment to be told that my magnesium levels were too low for treatment - so had an infusion (that I don't mind - too much). But my iron and haemoglobin levels are low and have to get some units of blood on Thursday. Well either be admitted as an in-patient or come back in. The hospital must do some more blood tests and blood matches also......is there no end to this disease.
The skin on my hands has become extremely dry - so much so, that the skin between my fingers is now brown and hard,,,,disgusting looking. Nurse has recommended a cream. I have to take a lot of Movicol and deal with the outcome....yuuk.
I hate this damn disease.....sometimes I wonder are the treatments worse than the disease.
Know by weekend, when I get bloods sorted I will be grand - but heck girls, it is tough going. Not looking for sympathy, as I know lots of you are in the same boat - but wouldn't someone give us a little speedboat to a faster recovery.
so, hugs to all of you out there.