Fed up: I've had just about all the drugs I can have I... - NRAS

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Fed up

Amy48 profile image
11 Replies

I've had just about all the drugs I can have I have long standing chest complaint that bothered me about 3 times a year.now after all the RA drugs last one toczilamab my chest complaint is worse and heart bladder I'm now on painkillers and steroids What we have to go through to get some respite is unbelievable, I read all the blogs and feel as if sometimes will there ever be a real break through for us sorry if I sound a bit down I probably feel a bit sorry for myself at the minute thinking of you all val

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Amy48
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11 Replies
sylvi profile image
sylvi

Val you have a right to feel like you do as your poorly. I know how you feel about not getting any respite.I hope you soon get some relieve.hugs to you.xxx

Amy48 profile image
Amy48 in reply tosylvi

Hi Sylvi thank you, I do follow you on the blogs val

My thoughts are with you too, are you saying no drugs other than toczilamab? left to try?

Amy48 profile image
Amy48 in reply to

No I ve had toczilamab the problems I have are worse since starting this drug so I told specialist I was coming off it for the reasons on my blog he agreed. I haven't seen him since my last appointment was cancelled thank you for your kind thoughts

miss profile image
miss

Val sorry to here your having a hard time. I will send you positive thoughts and hope you feel better soon. Hang in there xx

Amy48 profile image
Amy48 in reply tomiss

Thank you for your kind thoughts.

miss profile image
miss in reply toAmy48

Your very welcome xx

sciqueen profile image
sciqueen

RA is a bitch!

Sending cyber hugs (((()))) Hope you feel better soon:D

X

Amy48 profile image
Amy48 in reply tosciqueen

Thank you your right its a big bitch val

Munchkinella profile image
Munchkinella

Sorrry to read you're feeling so bad Val. Sending many gentle hugs from Australia. Take care. Love Janet xxxx

Amy48 profile image
Amy48 in reply toMunchkinella

Thank you it's so good to have all these good wishes from people who know what your going through val

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