Crossing the Line: Today is the first day of the rest... - NRAS

NRAS

37,273 members46,139 posts

Crossing the Line

2 Replies

Today is the first day of the rest of my life. Week One, Day One. Today I took my first methotrexate pill. (Why do they make the pills so small when most of the users don’t have the dexterity to pick it up?!?) Today I injected my first shot of Enbrel. I’ve crossed some sort of line into the reality of chronic disease.

I’ve never in my life taken drugs this scary. I was shaking and cranky as I read through the Bible-thick information and instruction packet. I wasn’t afraid of the needle. I was only a little afraid of the poison. I was mostly afraid that my life will never be the same. Three years of this says the rheumatologist (at least, of the methotrexate, hopefully not that much Enbrel? I don't know.) There’s no going back. This RA has become very, very real. Very, very fast.

I shooed my daughter out of the kitchen a moment too late. One should not have to explain to a four year old why mommy needs a shot to feel better. Her therapist will confirm this someday, I’m sure.

“Mommy needs a shot because she’s sick and the shot will help her not to be sore and achy all the time.” The look of fear, surprise, worry, and concern clouded in her big blue eyes will haunt me for some time.

“Will you cry when you get your shot like I do at the doctor’s office?”

“No, Baby, Mommy won’t cry.” Not yet.

So today is not magic. Today is scary. But there are still things to be grateful for.

I am grateful for medicine. My rheumatologist has told me a few times that ten or twenty years ago, my fate with RA would have been very different. He tells me that I would have been sentenced to a life of laying on the sofa eating bonbons and ordering the nanny around. Thank goodness we can avoid that! New treatments and new drugs have really changed the face of RA. No bonbons, no nanny.

I am really grateful for good insurance. The bill on my Enbrel was almost $7000.00. I paid less than $100. I am very grateful for good insurance.

I have actually found a reason to be grateful to have suffered through those weeks of gestational diabetes. Totally comfortable with a needle.

And I am grateful for a sense of humor. Strongly considered posting to Facebook: “Bought $7K of drugs tonight, came home, took some meth and shot up.” Decided it might just be taken a bit out of context. I’ll save that for week two.

Read more about...
2 Replies
Georgia3 profile image
Georgia3

Love your sense of humour!! Here's hoping the Enbrel does the trick for you

crystal meth lol x

Not what you're looking for?

You may also like...

remission then Rituxan again

I have had RA for 23 years. I actually went into remission 3 1/2 years ago and stopped Rituxan and...

Introducing myself

Hello all, I'm new to the site and relatively new to RA as well. I was diagnosed in January of 2017...

does everyone take methotrexate?

hi all, I’ve been having a bit of a rough ride with RA recently, i don’t seem to be able to get my...
Claire32 profile image

Medications stopped for surgery

I have RA and stopped taking Enbrel back in April due to surgery. Since then I have had an...
L1zzy profile image

Do antiTNFs work without backup?

I'm currently on methotrexate, lefluomide and hydroxy and will be starting on enbrel in a few weeks...
wishbone profile image

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.