So today in the post I receive a letter from the hospital cancelling my appointment with my consultant in three weeks. I have been waiting for ages to see him and I knew as soon as I saw NHS on the envelope what it was. I am so hacked off, I am really suffering at the moment and really need to see him to get my meds sorted and this stupid disease under control.
Since having to come off mtx in Nov my RA has been very active and not responsive to Leflunomide which I was subsequently put on. I am on a low dose and they won't increase it becasue of raised liver levels.
I'm living on painkillers and totally fed up. The letter today just tipped me over the edge and I had a good cry (pathetic I know). I feel like I've just gone backwards and now am back to where I was before being diagnosed. I can't do everyday tasks, I can't squeeze the toothpaste, wash my hair, turn the ignition in the car, I can't even walk the dog as it's too painful on my wrists and hands. I really really hate RA.
I know there's lots worse off than me but today I just feel rotten. So stuff the disease, the meds and the rest of it, I've just openend a bottle of vino and might just open another.
Thanks all for listening and cheers xx