I just wanted to share my crazy twist to havig RA. I have been in pain most of my life. I went to see a RA doctor at 28 years old and was laughed out of the office. He did the standard test on my hands and legs....to see how well I could move. Since I am extremely flexable, since birth, he said there was no way I had RA. So I left feeling hopeless. I went back to doctors many times over the next 10 years only to get the same results every time!
One day I was in so much pain, I went to my local clinic and just cried while explaining my pain to the GP. She looked at me with a scornful glare and said "So you want pain meds right?!"
I told her I hate pain meds because the strong ones make my head fuzzy. I just wanted answers. She did the standard movement tests and saw nothing, but as a last thought, she wanted to do some blood tests. She told me she was sure there was nothing with me....it was probably mental...but we'd do the blood test anyway.
I left feeling like all the other times...hopeless.
A few days later I got a letter in the mail. It was from the GP doctor. She said my RF numbers were off the chart and I needed to see a specialist. REALLY!!! So all this time and not one doctor gave me a blood test.
Turns out I have hypermobility syndrome. It caused my RA. I have no inflamation and I can move all my joints more than normal, so all the doctors dismissed RA. It makes me wonder how many other people have had the same experience as I did.
My RF is 192.6
my anti CCP is 525.7
I lived in Minnesota until 2013. I moved to Cuenca Ecuador in 2013 and since then have been pain free and off all RA meds. There is something very special about living here. I have had several friends with RA and SA move here and they have had the same results.
I would love to hear yor comments!