I saw my amazing Rheumy yoday and to think I wasn't that keen on him before.
He says he has studied my notes for the last five weeks and he thinks I may have a rare auto immune disease with or without RA.
I pretty much cried through the rest of the appointment but I know he said three very long and technical words I haven't heard.
I am having ultrasounds, X-rays, hand op to free the ligaments and remove all the lumps for biopsy.
I have to stop my RA meds for just now to see if it helps with further diagnosis. But he will give me steroids when I need as this helps the disease he is thinking off.
Then he said but it may not be, he needs me go have these test done . I am gutted and don't know where to turn .
I am desperately trying through the tears to see a positive as I haven't responded to the biologicals well and he said one other patient had this and he started another treatment with the RA treatment and is doing well , so I just have to hope ....
Feeling miserable ... Wish the helplines were open late lol x A