New research dare we have hope?!??: Sick of taking lots... - NRAS

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New research dare we have hope?!??

donnalouisec profile image
13 Replies

Sick of taking lots of meds including anti tnfs which are currently having very little effect. When I stumbled on this

arthritisresearchuk.org/new...

Has anybody else heard of the trials and what's your views!!!

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donnalouisec profile image
donnalouisec
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13 Replies
Josie2 profile image
Josie2

Not yet heard of this but upon reading it i just hope after all the trials its ok and goes ahead.

Seems a bit of a miracle but i can always hope.....

Thanks for info, much appreciated.

Jo

Xxxx

I Mentioned it in a blog about two or three days ago, there was an article in daily express and dail mail.. one can keep up to date by reading a mid range daily paper.

helixhelix profile image
helixhelix

I've seen a few reports of this recently - same story, not anything different. Sounds really positive, but I won't hold my breath as it can take a long time to get through the trials and get licensed for widespread use. I think one person on HU was invited to be on the first trial.

But here's hoping it moves quickly into production - the more choice of drugs that work the better!

donnalouisec profile image
donnalouisec

If I could I would have everything crossed for this to work. I'm on the verge of loosing my job and can see no way forward at the moment. I'm sick of being in pain and feeling tired all the time. X

watson3 profile image
watson3

Thank you for the information. It makes for interesting and exciting reading. Thank you for sharing it with us.

Hope you feel better soon.....

Carole

shirlthegirl profile image
shirlthegirl

Thank you for sharing this, it great to know that we are not being forgotten XX

tamnwill profile image
tamnwill

Cool :o) Well done. I'm on a latest after trila drug ( infusions of Toc' ) and I think it only took 2.5 years for it to become widely available, so hopefully this one will too ( if successful)so there is every reason to be very hopeful.

anun profile image
anun in reply totamnwill

How do you sign up for a trial?, I am on Humira and Leflunomide, be interestng to consider one at the least!!

tamnwill profile image
tamnwill in reply toanun

I think yr consultant suggests it, if you're having no success with current drugs and you've tried all the usual suspect!

donnalouisec profile image
donnalouisec

Well yet another restless night.. The pain in my wrists today is unbearable, looks like another day in bed for me ??. I'm totally fed up now and feeling really down. I think I'm now immune to my buTrans pain patches and my oral tamgesic painkillers... I wish I had my life back... Just gone 40 and feel 90.

tamnwill profile image
tamnwill

Hi Donna, what anti inflammatories are you on? I can empathise with you. Do you use heat sacs at night? have memory foam pillows to put under bad joints? Voltarol gel to apply to swollen areas? Wrist supports?

Tam

We've got to hope always. This sounds potentially exciting to me - and hopefully crossing fingers will become a thing of the past for us all one day soon. Tilda

petalnumber2 profile image
petalnumber2

I read with interest and it sounds really hopeful. Thanks for telling us all. June

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