ive had a letter from consultant i dont understand can anyone tell me what it means please .
Likely undifferentiated connective tissue disease(weeklyana positive, photosensitive rash, synovitis on ultra sound ,white finger. blood and leucocytes in urine. fibro, nodular oestoarthritis. hb 13.7 wcc 6.7 platelets 304
esr 13 crp ,<5 I have no idea what these results are all about.
thanks for looking carol
Hi Carol,
I dont mean to be short with you, but this REALLY is a case where you need to talk to your doc, why did they send you the results and not your GP?
I would telephone the Consultants secretary or your GP, and make an appointment to discuss these results.
Kind Regards, Gina.
I was CONFUSED AS TO WHY I HAVE RESULTS I DONT UNDERSTAND WILL TRY AND GET DOC APPOINTMENT MY DOC IS HOPELESS YOU EITHER HAVE TO WAIT 3 WEEKS IF YOU SPECIFY DOC OR GO ON DAY IF YOU CAN GET IN AND SEE ANYONE HOPELSS
THANKS FOR READING
Not much help I know but I think hospitals now have to send a copy of the clinic letter to the patient as well as their GP, might explain the jargon?
Clare
Gina's right, you must speak to your doctor or the rheumy department where you spoke to the consultant. But essentially don't worry too much as it's not saying anything really dreadful from my reading of it. I'm not medically trained, so this is just a personal opinion but they seem to be saying that your results at the moment do not point to a specific one of the auto-immune conditions so they're not naming a specific one like RA or lupus, but you're in that area. These diseases are hard to pin down, especially in early years so docs don't want to label you with something that might not be exactly right, so they use words like undifferentiated. And your blood results aren't bad and just show a bit of inflammation, but nothing scary. So don't fret, just get an appointment so you talk through the results and what they suggest.
Polly
Thank you so much . Just a bit confused about it, my cousin has lupus. I had face rash 5 years ago saw specialist as an emergancy at clinic in hospital he told me systemic lupus. He however forgot to document meeting as he saw me in middle of clinic doc sent me straight up. so a bit of a mess i should have taken pics had rash nearly a year. might no it hasnt come back lol not that i want lupus but when a specialist sees it and says it bit dif to be told he didnt write it so they cant believe it. hey ho thats life i guess thatnks for listening .
keep well smile carol
Well they aren't saying nothing's wrong and it's all in your head Carol - but equally they aren't specifying what it is - so I think that's probably a good thing in some ways don't you? My friend had a similar diagnosis a few years ago and she's pretty well now but gets episodes of pain and fatigue again when she's run down. Your inflammatory markers are not too high at all but my GP always tells me not to read too much into them so as Polly says ask your GP to explain when you can - you can always ask them to phone you if you can't get an apt. TTx
Hello,
My consultant always sends me a duplicate letter of what he sends to my GP, if there's anything I'm unsure about I just go and see my doctor.
Normally my consultant has explained in advance what i'll get in letter but totally appreciate that might not be the case for everyone!
When it's something urgent the letter always says for me to phone my GP and arrange an appt, I think in this case you should do that just to put your mind at ease and get an better understanding of what they are saying.
Write down all your questions before you go so you don't get confused and forget to ask things.
Good luck x
Hi
The letter is simply the consultant's diagnosis and blood results, my consultants secretary always sends me a copy of letters sent to my GP.
Take the letter along to you GP and he'll be able to explain it to you.
Beth x
i also recieve a letter aswell as my gp ,my surgery has drs that will ring you back and talk things over with you if getting an appointment is difficult ,or ring the hospital you are under and see if they have a specific nurse to deal with your confusion ,i also am finding this site really good ,
Hi, I have looked in my MTX blood book and your blood test results are all in the "normal range" as far as I can tell. But what do I know?
However, I have photosensitivity (had it for years) and Raynauds circulation in fingers, which are common in Sjogren's Syndrome which I do have, along with Sero-negative RA.
Why not make an appointment with a doctor that you trust and who will listen, wait the 3 weeks and have a proper chat about it all. Take a list of questions, and write stuff down that he tells you.
I am sure you will be fine, but as Helixhelix says, it can take a while to pin down exactly which connective tissue disease is which, and it is better to be right than speedy.
It took about 3 years for them to put a label on me! I think I was actually quite relieved when I learned I had RA. Sounds stupid now, but not knowing felt worse at the time. (If you know what I mean.)
I never get any copies of letters sent to me about any of my medical conditions!
nither do i white dog
Letter from consultant arrived 6 months late !!
can believe the letter.!!
I don't understand about permanent damage that RA can cause, can anyone explain?
Can someone let me know what remission is?
