This morning I got a snotty letter from the consultant. It said my GP has written to them to express my concerns and frustrations regarding the lack of treatment I have received. It said they noted I had asked for a second opinion at Bristol and what did I hope to gain from that. It was unfortunate that the waiting list for an ultrasound was four months but after that they would look at if I needed any treatment with appropriate drugs and this had been explained to me. Perhaps my doctor could refer me to a pain management clinic as I obviously wast dealing with pain very well.
So just to be clear what actually happened in clinic was I was told a score of 5 did not meet the requirement for biologics and I was allergic to dmards so I had no treatment options left. They are now trying to make out I've no active disease because my bloods don't show inflammation however all the joints on my hands are swollen, I can't bend my knees because of the fluid on them and neither can I bend my elbows all symptoms I was told last September clearly demonstrated active disease requiring treatment yet nothing has changed since last September other than I've got worse but suddenly they are saying oh no that disease we said is active no we are now saying we can't see because we've completely failed you. I am in the most appalling pain at the moment and the pain management reference was a slap in the face. I'm just appalled at the standard of RA treatment in some places