Hi everyone, I have to say that I am sitting here fuming because I received a copy letter from Rheumy Doc to my GP with all relevent information from my last appointment which was, wait for it....... last August. At that app he suggested that MTX was upped from 20mgs to 22.5mgs because my Das score was 6.43 which he says in the letter suggests hight disease activity.
Well I wondered why my GP had not altered my dose and now I know why, NO LETTER sent to GP. To be honest I should have phoned the Rheumy secretary to sort it out, but I didn't. Must have something to do with not wanting to take the meds at all !!
My next appointment is in a couple of weeks time on 8th Feb and I am gearing myself up to talk to him about my ankles which were very painful until this last week. My right ankle was so painfull that I couldn't bear to put my weight on it. Thankfully I've seen a podiatrist twice recently and she has built an insole up in stages to help alleviate the strain on outside ankle joint.
I've not been very successful at talking about any concerns at appointments, because you are whipped in and whipped out of the consulting room as quickly as possible and I've always felt that there isn't time to ask questions. But I have got to stick to my guns this time.
At the end of the letter he says " Her disease activity remains high and possibly we need to escalate therapy again. Yet at that appointment I enquired about MTX by injection and his answer was that " it would be too strong for me". I really am foxed !!
I know that there must be huge strain on the doctors and clinics as a whole because of patient numbers. But if the precious time a patient spends in front of a Rheumy Doctor does not allow time for patients concerns and follow up instructions to GP's are not sent on properly, what hope is there for satisfactory treatment of this awful disease?
Well, I feel better having got this off my chest. I wish you all well and thank you for patiently reading my rant. June xx