Went to see my Rheumatologist yesterday and one of the main things I wanted to do was to reduce my methotrexate. Although I've been taking it for years have always suffered form nausea and headaches through taking it, take folic acid everyday apart from MTX day and have switched from tablet to sub cut injection and that still make no difference. It was so bad last week I suffered for almost four days with terrible headaches and nausea from the moment I awoke and lifted my head from the pillow I felt a pounding head and that's when I knew I'd got it for the day.
So now I've finally had enough I haven't even taken this weeks dose (not recommended) because I feel I've only just recovered from last weeks. I told my Rheumy exactly how I felt but and as agreed to reduce the dose from 15mg to 10mg.
He's not happy though as he knows how difficult my RA is to control, again he mentioned going onto Tocilizumab as the Rituximab is not lasting like it was. To me though it's doing the best job it can and as I have reactions to drugs don't want to change to another incase I react and then have to move onto something else and begin to exhaust my treatment options. So again I got my own way! That's what I like about him he listens to me and doesn't judge me.
Have to go for an MRI on my back even though I was told a few weeks ago that my x-ray was fine, apparently there were signs of damage from the RA, so crossed wires there! Have to wait and for the appointment now to see whats happening.
At my appointment a few months ago we talked about surgery on my knuckles as I have so many nodules and if you have them too will know that if you knock them they can be very painful. Anyway they say that surgery is not worth the risk as being such a small incision would be a risk of infection the other option would have been radioactive treatment around the joint but the knuckles are too small for this,
didn't like the sound of this anyway. So just have to put up with them, just hope the nodules don't get any bigger!
So that's me for the time being, will be going in for Rituximab treatment soon not looking forward to it but it does the job and that's the main thing.
Take care folks!!