Hello all, my name is Angie, I am 40, and I was diagnosed properly 3 months ago with Inflammatory Arthritis(sero-negative) but have had symptoms for over 10 years. I changed my doctor last year as I was constantly fobbed off with 'it's just arthritis - get used to it', and my new GP immediately said it was more serious and sent me to the consultant. I have had a series of MRI's ((3 to date), ultrasounds, x-rays, and have had 3 injections in my sacroillic joint to dtae. Have a review to get results in June. I take Sulfasasalizine 500mg x 4 daily, along with Tramadol and Arcoxia (Etoricoxib). I'm also on Ad-cal D3 as my calcium levels are extremely low - even though I have Soya milk which has added calcium in it (I am intolerant to cows milk). I also take Fish oil daily.
For the last 3 weeks I have felt constantly sick and whenever I eat I burp for about 2 hours. This is so embarrising and I don't know what to do. I definately am not pregnant - already have 5 children aged 9 to 21 and have not had any 'activity' for about 4 years as my OH had the snip. I have some days gone without food as I feel so sick and other days I do eat but then have this burping issue.
I also have extreme tiredness issues and can sleep for 12 hours easily, but my sleep is broken due to constant pains in hips, shoulders and legs. I work full time for a large national charity as an advisor. I have to work as my OH was made redundant 2.5 years ago and we just can't manage on Benefits alone; but my employers are fantastic and understanding to my condition and assist me throughout so I actually enjoy what I do and enjoy being me (not being tied to the house and having to be around OH all day).
The medication has not so far helped as far as the pain is concerned either but after reading your blogs I understand that it may take a while for the right meds to work for me. Most of my pain is on my left of my body - feet, knee, hip, thigh, back, elbow, shoulder, wrist, hand and fingers, and my neck. I do have pain on my right side but it appears to mainly be on my left. I walk with a limp and the Rheumy said my left leg is shorter. I have recently applied for a Blue Badge and am waiting to hear if I am succesful; I use a stick most days. Once I have the Blue Badge I will try for DLA.
I love reading your blogs, and find my self with similar issues (bad days, unsympathetic OH and family etc). It has taken me ovver an hour to write this as my fingers are locked today. I slept from 8pm to 7 am this morning yet I still feel tired, but as a working mum I can't just go back to bed when I feel like it.
thank you for reading