I'm a bit wound up so thought I'd throw it open. I've still no proper diagnoses as of yet, I've got my next app with rheumy con next month.
Felt a bit fobbed off at last app 4 months ago eg your levels are low prob still steroids etc see you in 4 months and yes keep on the painkillers and naproxen if you think you need them ??
Since then I've been hosp twice with chronic gastritis, have developed a dilated kidney and it looks like I've got a problem related to inflammation in my left eye. So what happens if when they do my bloods and my levels are low again and he fobs me off. My GP not happy he didn't prescribe omprezol (sp) with the naproxen and has since changed my pain meds to try and help ..... I'm coping but I'm not sure I can do another 12 months of this