Evening everyone and I hope this horrible wet weather isn't dampening too many spirits?
So finally got back to see my rheumy this Monday after an awful experience with Tociluzimub infusions earlier in the year to discuss the next plan.
I've had RA now for several years and have never really managed to get it under control. I've been on mtx all of the time. I've tried Hydroxy, Cimzia and Abatacept and then the Toci. I'm also taking meloxicam and preds right now whilst I'm trying to find the right drugs for me.
My consultant felt that changing tact and trying Leflunomide with the mtx might be worth a go. He said I would need a bit of patience as it can take 3-4 months to work I know most of the RA drugs can take time to work but he seemed to be suggesting this one can take a particularly long time.
My problem is work. I had a four months off last year. I had just over a month after reacting to the Toci this june, returned to work and felt loads better (possibly benefits from the Toci) and then starting flaring again. I've been off sick now since earlier August and when I last saw my GP he signed me off for 3 months taking me to the end of November ..work was not impressed!! Have to say I was a bit gobsmacked at being signed off for so long. Anyway, I need to get back before Christmas as work are murmuring ill health etc. and I'm not ready for that yet, plus my pay will start reducing and can't afford that either,
So I told my rheumy all of this and he suggested possibly retrying the Toci but in injections (although the it did make me ill, I did feel loads better when the side effects work off just didn't last as I didn't have any more infusions). He said I may feel unwell but it would be more manageable as the injections were weekly and not monthly and it may settle, or not. However my hospital is in he process of switching from infusions to injections and he wasn't sure if they were actually using the injections yet and I won't know till next week when the specialist nurse is back, he gave me a prescription for the Leflunomide but said wait until I hear from the nurse about th injections, if they weren't available to go onto the Leflunomide.
Sorry that was all quite a ramble really when all I want to know is how long it's taken for others to feel the benefit of Leflunomide and if it is usual for it to take a long time. I'm a bit nervous about trying the Toci again but if it works it will work much more quickly. If the injections are available I could still choose the Leflunomide but some shared experiences would be really helpful in my making that decision. Thanks all and sorry about the war n peace!!!