I started tofacitinib 8 weeks ago and so far not seeing much difference. I've searched for the drug on this forum and found lots of info, however; I have a few questions that don't seem to be covered in previous posts.
Can anyone share their experience of how long it took to take effect?
I've been having terrible headaches the last week or so (they started week 7 of being on the drug). Headaches for me are very rare so naturally I'm worried. I've had my eyes tested at the weekend and my lenses have changed by 0.5 for reading which could be causing them so I'm waiting until I get my new glasses to see if they continue before ringing my rheumy as he is so hard to get hold of. GP just told me to continue taking naproxen and take paracetemol..
Has anyone else experienced headaches? Its right at the top of my head and the bad days I am very light sensitive.
I've been holding out so long for this wonder drug and finding myself bitterly disappointed so far. I'm really hoping I might see a difference soon but in the meantime, I'm very down in the dumps and having a pity party about how much pain and fatigue I'm experiencing. The pain for the most part, I can still function on with painkillers but the fatigue is a killer and I'm scared because its getting worse. I was on sulfa and still on 10mg of MTX
Sorry for the long post, I'm feeling very sorry for myself. x
It's impossible to get hold of my rheumy