Remission after 22 years with Severe Destructive Rheu... - NRAS

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Remission after 22 years with Severe Destructive Rheumatoid Arthritis!

RAat13 profile image
80 Replies

So today, I got the best news me and my family have had for a long time.. I'm in Remission, my CRP is 1 with no active disease. After 22 years and last year being one of the worst years I've ever experienced in my RA lifetime I can say I'm GOOD!I'm on Rituximab , which I started in August 2023, and it has honestly changed my life and I pray it continues to work.

I had to share it on here because as much my family are ecstatic about it I needed to share with others like me that there's hope for us, even if it's for short time!

Much love everyone ❤️

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RAat13 profile image
RAat13
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80 Replies
3LittleBirds2 profile image
3LittleBirds2

Hi, I’m so pleased for you , Rituxumab is a wonderful drug! I was taken off it last year after 7 years but happy to say they’re putting me back on it. Long may it continue for you. 😊

pammi2 profile image
pammi2 in reply to3LittleBirds2

why was you taken off? did you have any side effects?

3LittleBirds2 profile image
3LittleBirds2 in reply topammi2

No, nothing like that. My Consultant didn’t think it was working for me anymore and switched me to a different med.

pammi2 profile image
pammi2 in reply to3LittleBirds2

but you said they are putting you back on it?

3LittleBirds2 profile image
3LittleBirds2 in reply topammi2

Yes, because the medication I was changed to is not working as well as Ritux did, it was trial and error. I have posted a lot about it this year, too complex to explain here.

RAat13 profile image
RAat13 in reply to3LittleBirds2

❤️

helenlw7 profile image
helenlw7

That is brilliant news. I’m 20 years on from diagnosis, and although I have some better days, I’m never without pain, but when I remember what I was like before diagnosis it puts it all into perspective.

RAat13 profile image
RAat13 in reply tohelenlw7

❤️

Madmusiclover profile image
Madmusiclover

superb!

RAat13 profile image
RAat13 in reply toMadmusiclover

❤️

Deeb1764 profile image
Deeb1764

amazing 🥰

RAat13 profile image
RAat13 in reply toDeeb1764

❤️

springcross profile image
springcross

That's great news, you waited long enough! 👏

RAat13 profile image
RAat13 in reply tospringcross

❤️

Amnesiac3637 profile image
Amnesiac3637

Whoohoo! Good news on here is in short supply so that’s fantastic and long may you continue well and happy.

RAat13 profile image
RAat13 in reply toAmnesiac3637

❤️

virtualreality profile image
virtualreality

That is brilliant news, and thank you so much for sharing it!

RAat13 profile image
RAat13 in reply tovirtualreality

❤️

HappyD34 profile image
HappyD34

Absolutely fantastic news , well done you for getting through all the hard times. Gives others so much hope I’m sure 😃

RAat13 profile image
RAat13 in reply toHappyD34

❤️

HeadInASpin profile image
HeadInASpin

How wonderful, thank you for sharing your happy news. Long may it continue for you. It gives us all hope and shows we should never give up!

RAat13 profile image
RAat13 in reply toHeadInASpin

❤️

sylvi profile image
sylvi

Well done i am happy for you darling and long may it continue. xxxx

RAat13 profile image
RAat13 in reply tosylvi

❤️

skinclinics profile image
skinclinics

I am soooo pleased you have posted your good news . I have tried 4 different DMards and a Biosimilar.. Yuflyma to no avail and I will be now starting my first infusion of Rituxumab a week on Monday and Part 2 .. … early December

I’ve lost heart lately and started to believe that I was never going to find something that would be effective especially in the med/ long term of treatment .

So thank you for giving me a more positive outlook

pammi2 profile image
pammi2 in reply toskinclinics

how long did you go on yuflyma, i only started june and already it is not working,

skinclinics profile image
skinclinics in reply topammi2

It was for 4.5 months and my RD symptoms just got more out of control . That was only because the Yufoyma wasn’t effective …. Not that it caused my symptoms to worsen

Sadly RD does not have a “one pill for all “

My rheumatology dept wanted me to stay on it for 6 months ( think as per NICE. Guidelines )

But on seeing me and my blood results they decided to move me on to infusions

Good luck .. don’t give up

RAat13 profile image
RAat13 in reply toskinclinics

❤️I hope it does for you what it's done for me.

RTX was my last available option, thankfully it worked (for now) x

Stoli72 profile image
Stoli72

Brilliant news! So delighted to hear. Your family and you have every right to be ecstatic!

RAat13 profile image
RAat13 in reply toStoli72

❤️

Gramma3 profile image
Gramma3

So nice to hear good positive news!

RAat13 profile image
RAat13 in reply toGramma3

❤️

Memaw21 profile image
Memaw21

Great news, thanks for sharing 💚💜

RAat13 profile image
RAat13 in reply toMemaw21

❤️

ruth_p profile image
ruth_p

❤️❤️❤️

RAat13 profile image
RAat13 in reply toruth_p

❤️

WendyB123 profile image
WendyB123

That's fantastic! Really great to see someone on this forum with good news! Rituximab is amazing. I had a few brilliant years on it but haven't had it since the pandemic (my haemoglobin count has apparently too low). I'm seeing my consultant today and really hoping to get back on it. Take care x

RAat13 profile image
RAat13 in reply toWendyB123

❤️🤞🏻for you today x

WendyB123 profile image
WendyB123 in reply toRAat13

Thank you ❤️ Consultant was lovely and is going to make enquiries even though my haemoglobin is still low. She also talked about Upadacitinib being a possibility, so I'll go and do some research... x

Runrig01 profile image
Runrig01

Excellent news, thanks for sharing. Gives hope to others 👍

RAat13 profile image
RAat13 in reply toRunrig01

❤️

GinnyE profile image
GinnyE

Incredible good news. You have had a hard journey. Enjoy yourself.

RAat13 profile image
RAat13 in reply toGinnyE

❤️

pammi2 profile image
pammi2

have you had any side effects

RAat13 profile image
RAat13 in reply topammi2

No, some of my hair and lashes fell out and was sick the first time but nothing since.

Numptybrain profile image
Numptybrain

Absolutely fantastic news, hope for everyone. Thanks for sharing and good luck

Take care

Wendy xx

RAat13 profile image
RAat13 in reply toNumptybrain

❤️

ABwn profile image
ABwn

What wonderful news. First time on here that I've read of anyone managing to be in full remission. Good luck and enjoy your new life.

RAat13 profile image
RAat13 in reply toABwn

❤️

MrsBones123 profile image
MrsBones123

That's great news, so happy for you and your family 🎉 Gives new members hope too 👍❤️😊

RAat13 profile image
RAat13 in reply toMrsBones123

❤️

Mostmoses profile image
Mostmoses

Wonderful! I'm really pleased for you:-) And it's always great to hear a positive story - thanks for sharing.

RAat13 profile image
RAat13 in reply toMostmoses

❤️

Leics profile image
Leics

Woohoo amazing so pleased for you and your family. An extra special treat is in order I think. Early Christmas present ?

RAat13 profile image
RAat13 in reply toLeics

❤️ think this news was the best early present I needed

Otto11 profile image
Otto11

Great news. Long may it continue.

RAat13 profile image
RAat13 in reply toOtto11

❤️

RAat13 profile image
RAat13

❤️ still get stiffness and after a long day on my feet I'm sore and can't walk but the next morning I'm no longer suffering.

wilbertjellyfish profile image
wilbertjellyfish

Brilliant. Absolutely delighted for you. Gives the rest of us hope

Gnarli profile image
Gnarli

Oh I wish I could push that "like" button more than once. Wonderful news and long may it continue.

Gjbrose profile image
Gjbrose

so pleased for you what a fantastic piece of news and long May it continue, sending hugs 🤗

1ChLoE profile image
1ChLoE

Brilliant News ❤️

Arthurthecat profile image
Arthurthecat

Such wonderful news! Long may you enjoy remission!

Gottarelax profile image
Gottarelax

Fabulous news. Enjoy your new found health!

Jackie1947 profile image
Jackie1947

Wonderful news for you and well deserved ❤️

Stills profile image
Stills

hurrah 😀

Rainyda profile image
Rainyda

Congrats! Very happy for you, and wishing you all the best! 💖

65_women profile image
65_women

I’m on Rituxmab and it works for me. But apparently. Rituxmab has come off patten. And they have a new Ruxience. Have you heard this?

RAat13 profile image
RAat13 in reply to65_women

No, i have heard some people not able to get it recently but I've not had that issue

65_women profile image
65_women in reply toRAat13

Keep me informed of the Rituximab. My case worker has told me about this. She told me that for myself I could have my last Rituximab at the end of January. After that the change over to Ruxience, they have told me it is as good of Rituximab.🙏🏻🙏🏻

Bethany02 profile image
Bethany02

Woo hoo 🎉

Granblue profile image
Granblue

Chuffed for you 😀

MJSlide1958 profile image
MJSlide1958

That is so brilliant, wonderful news! Well done! It must be great having no pain. Do you have Rituxumab once a month in hospital, or do you inject weekly. I only know Enbrel.

RAat13 profile image
RAat13 in reply toMJSlide1958

It's 2 doses, 2 weeks apart, every 6 months. Enbrel was my very first biologic x

MJSlide1958 profile image
MJSlide1958 in reply toRAat13

Thank you. Is it an infusion in hospital or pre filled syringe type injection?

RAat13 profile image
RAat13 in reply toMJSlide1958

It's an IV infusion in the hospital, takes about 4-5/6 hours overall, pre-meds are given 30 minutes before.

MJSlide1958 profile image
MJSlide1958 in reply toRAat13

Thanks very much and well done to remission.

LGLLfighter profile image
LGLLfighter

Happy for you and congratulations from "across the pond". Thanks for sharing.

stbernhard profile image
stbernhard

That's wonderful news, thank you! I know how you feel. You want to tell the people who've been through it because they will know or have a good idea what this means. I remember the day I realised I was in remission vividly and it's 19 years since. Very happy for you. A door has opened!

great news ❤️

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