So today, I got the best news me and my family have had for a long time.. I'm in Remission, my CRP is 1 with no active disease. After 22 years and last year being one of the worst years I've ever experienced in my RA lifetime I can say I'm GOOD!I'm on Rituximab , which I started in August 2023, and it has honestly changed my life and I pray it continues to work.
I had to share it on here because as much my family are ecstatic about it I needed to share with others like me that there's hope for us, even if it's for short time!
Much love everyone ❤️
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RAat13
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Hi, I’m so pleased for you , Rituxumab is a wonderful drug! I was taken off it last year after 7 years but happy to say they’re putting me back on it. Long may it continue for you. 😊
Yes, because the medication I was changed to is not working as well as Ritux did, it was trial and error. I have posted a lot about it this year, too complex to explain here.
That is brilliant news. I’m 20 years on from diagnosis, and although I have some better days, I’m never without pain, but when I remember what I was like before diagnosis it puts it all into perspective.
I am soooo pleased you have posted your good news . I have tried 4 different DMards and a Biosimilar.. Yuflyma to no avail and I will be now starting my first infusion of Rituxumab a week on Monday and Part 2 .. … early December
I’ve lost heart lately and started to believe that I was never going to find something that would be effective especially in the med/ long term of treatment .
So thank you for giving me a more positive outlook
It was for 4.5 months and my RD symptoms just got more out of control . That was only because the Yufoyma wasn’t effective …. Not that it caused my symptoms to worsen
Sadly RD does not have a “one pill for all “
My rheumatology dept wanted me to stay on it for 6 months ( think as per NICE. Guidelines )
But on seeing me and my blood results they decided to move me on to infusions
That's fantastic! Really great to see someone on this forum with good news! Rituximab is amazing. I had a few brilliant years on it but haven't had it since the pandemic (my haemoglobin count has apparently too low). I'm seeing my consultant today and really hoping to get back on it. Take care x
Thank you ❤️ Consultant was lovely and is going to make enquiries even though my haemoglobin is still low. She also talked about Upadacitinib being a possibility, so I'll go and do some research... x
Keep me informed of the Rituximab. My case worker has told me about this. She told me that for myself I could have my last Rituximab at the end of January. After that the change over to Ruxience, they have told me it is as good of Rituximab.🙏🏻🙏🏻
That is so brilliant, wonderful news! Well done! It must be great having no pain. Do you have Rituxumab once a month in hospital, or do you inject weekly. I only know Enbrel.
That's wonderful news, thank you! I know how you feel. You want to tell the people who've been through it because they will know or have a good idea what this means. I remember the day I realised I was in remission vividly and it's 19 years since. Very happy for you. A door has opened!
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