So today, I got the best news me and my family have had for a long time.. I'm in Remission, my CRP is 1 with no active disease. After 22 years and last year being one of the worst years I've ever experienced in my RA lifetime I can say I'm GOOD!I'm on Rituximab , which I started in August 2023, and it has honestly changed my life and I pray it continues to work.
I had to share it on here because as much my family are ecstatic about it I needed to share with others like me that there's hope for us, even if it's for short time!
Much love everyone ❤️
Written by
RAat13
To view profiles and participate in discussions please or .
Hi, I’m so pleased for you , Rituxumab is a wonderful drug! I was taken off it last year after 7 years but happy to say they’re putting me back on it. Long may it continue for you. 😊
Yes, because the medication I was changed to is not working as well as Ritux did, it was trial and error. I have posted a lot about it this year, too complex to explain here.
That is brilliant news. I’m 20 years on from diagnosis, and although I have some better days, I’m never without pain, but when I remember what I was like before diagnosis it puts it all into perspective.
I am soooo pleased you have posted your good news . I have tried 4 different DMards and a Biosimilar.. Yuflyma to no avail and I will be now starting my first infusion of Rituxumab a week on Monday and Part 2 .. … early December
I’ve lost heart lately and started to believe that I was never going to find something that would be effective especially in the med/ long term of treatment .
So thank you for giving me a more positive outlook
It was for 4.5 months and my RD symptoms just got more out of control . That was only because the Yufoyma wasn’t effective …. Not that it caused my symptoms to worsen
Sadly RD does not have a “one pill for all “
My rheumatology dept wanted me to stay on it for 6 months ( think as per NICE. Guidelines )
But on seeing me and my blood results they decided to move me on to infusions
That's fantastic! Really great to see someone on this forum with good news! Rituximab is amazing. I had a few brilliant years on it but haven't had it since the pandemic (my haemoglobin count has apparently too low). I'm seeing my consultant today and really hoping to get back on it. Take care x
Thank you ❤️ Consultant was lovely and is going to make enquiries even though my haemoglobin is still low. She also talked about Upadacitinib being a possibility, so I'll go and do some research... x
Keep me informed of the Rituximab. My case worker has told me about this. She told me that for myself I could have my last Rituximab at the end of January. After that the change over to Ruxience, they have told me it is as good of Rituximab.🙏🏻🙏🏻
That is so brilliant, wonderful news! Well done! It must be great having no pain. Do you have Rituxumab once a month in hospital, or do you inject weekly. I only know Enbrel.
That's wonderful news, thank you! I know how you feel. You want to tell the people who've been through it because they will know or have a good idea what this means. I remember the day I realised I was in remission vividly and it's 19 years since. Very happy for you. A door has opened!
I took mtx for 20 years and after getting pneumonia. It all changed. Just added humira to mtx. Still not feeling great. Does it take more time. I am so depressed
I took Methotrexate when I was 13 to 17/18, worked okay but not enough, I took Enbrel with it.I've had many DMARDS and Biologics over a 22 year span, but I never gave up. I was put on Rituximab last year and that changed everything, I'm also taking Sulfasalazine. I feel your depression, I've had it and the frustration and anger that comes with it can be just as soul destroying BUT keep going, speak to someone about how you're feeling and be pushy if you have to with your consultants about medications and what's working and what's not.
Unfortunately there's no one size fits all with this disease and us as a community will support you in anyway we can.
Just put a post on here and there will always be people that will respond x
I’m really pleased I read this I’m on mmf and rheumatologist doesn’t think it’s working so wants me on infusions of rituxumax had some blood tests and now some ultrasounds so awaiting next appointment, I’ve been struggling since my mid 20’s with pain and got worse as I’ve got older but since lungs became involved 3 years ago autoimmune was suspected and here I am.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
And it's always great to hear a positive story - thanks for sharing.
Rheumatoid arthritis since 1995
Rheumatoid arthritis 
Rheumatoid arthritis and Fatigue
Rheumatoid arthritis pain with no joint inflammation
Heather’s Life with Rheumatoid Arthritis
