Not medical...well not really.: Along side the daily... - NRAS

NRAS

37,276 members46,139 posts

Not medical...well not really.

Blackberrywine profile image
73 Replies

Along side the daily bounce on the trampoline (going well by the way) I've taken up weird drawing. The daily bounce is for balance and strengthening. The drawing is to try ward of going mad. My best friend helpfully told me it was too late in my case. Nice! The ink drawings are remarkably soothing to do. They are not copies. Just pen and ink. I don't have a TV and was looking for something to occupy my mind in the evenings. Oddly very precise, which is the exact opposite of my usual chaotic self. I kind of enjoy the focus.

What do you all do to keep body and mind active?

Written by
Blackberrywine profile image
Blackberrywine
To view profiles and participate in discussions please or .
73 Replies
Blackberrywine profile image
Blackberrywine

Couldn't figure out how to turn photo. It's actually a chameleon.

ABwn profile image
ABwn in reply toBlackberrywine

Very clever. Photo is stunning. Thank you for sharing.Jigsaws, reading, TV (falling sleeping in front of TV!!) and walking. Used to be a school governor after I retired for 2 schools.

😊

Blackberrywine profile image
Blackberrywine in reply toABwn

Walking is great, although I was finding it a bit more challenging on uneven ground. Do you walk anywhere special?

ABwn profile image
ABwn in reply toBlackberrywine

Along the seafront, I live in a town on the coast, or , when I felt stronger, out to the country, where there is a rough terrain. This was my exercise during the pandemic, as I live on my own.I now have compound fracture of the spine + osteoporosis, various other 'thing's.

Hearing - quick change of subject 🤔

I hadn't realised that RA can cause hearing problems. My symptoms started at the onset of coronavirus, although according to every test I took, I have never had covidu only a bad reaction to the first jab.

I suffer with bad hearing in both ears, tinnitus and very bad balance problems. Ended up with hearing aids, which helped slightly with the hearing but of no help with tinnitus or balance. Stopped using them because they got blocked up quickly with earwax.

I hear when I first wake up what sounds like being in a forest with hundreds of small birds singing. Live in the centre of a town with very large seagulls!! Was first diagnosed with RA approx 15 years ago. Due to balance problems had a fall last Christmas, which caused the spinal fracture and then found to have osteoporosis. No-one has ever mentioned hearing/balance symptoms.

Is it worth mentioning to GP?

Blackberrywine profile image
Blackberrywine in reply toABwn

Funny you should mention hearing. Quite a few of my friends developed hearing difficulties over last couple of years. They now have hearing aids. I went completely deaf in one ear during a virus recently. Thankfully recovered.

Always worth seeing someone about balance issues I'd say. I fell over a lot, but my problem was weak muscles, and a spinal issue. I still can't get up stairs! Hearing issues can cause balance problems.

ABwn profile image
ABwn in reply toBlackberrywine

GP has referred me to the audiovestibular dept at local hospital. So now waiting for an appointment. Think I need to be patient, like most hospitals they will contact me in due course, so in the queue. Thanks Blackberry wine.

Blackberrywine profile image
Blackberrywine in reply toABwn

That's good you have at least got a referral. I'm afraid everything takes so much longer these days. In the mean time...mind how you go. 😁

ABwn profile image
ABwn in reply toBlackberrywine

Thank you. Take care and enjoy any warm weather that comes your way. 😚

helenlw7 profile image
helenlw7

That’s amazing! You must have an enormous amount of patience.

I walk on crutches so bouncing on a trampoline is out for me. I did challenge myself to walk more steps every day, but it only really works when my daughter takes me shopping or for hospital appointments. I fill my time reading, listening to audio books, cross stitching pictures, colouring and playing brain training games on my iPad.

Blackberrywine profile image
Blackberrywine in reply tohelenlw7

Sorry you are on crutches. Mine are still in my cupboard (just in case!). Cross stitching and brain games takes some patience! I think things that need focus like this are very good for the noggin. Good for youbtrying more steps. I know that's hard with crutches.

helenlw7 profile image
helenlw7 in reply toBlackberrywine

It is hard with crutches and sometimes when we go out I have to use my wheelchair. One example is the car park at my hospital, I have a lot of OP appointments, and the car park, with all the disabled spaces, is too far from the hospital entrance to walk with crutches, so now I get her to drop me off outside the main entrance and pick me up there after my appointment.

Blackberrywine profile image
Blackberrywine in reply tohelenlw7

Crutches used to really hurt my hands. Have you had an operation? Don't answer if that's too personal.

Wishing you well.

helenlw7 profile image
helenlw7 in reply toBlackberrywine

I find the crutches hard on my hands even though they have the special hand holds.

On May 5th last year I collapsed with exhaustion (my husband has dementia and I cared for him for 3 years). I can’t remember collapsing, or my daughter coming the next day, or the 45 minute ambulance journey to the hospital in my area that all the broken hips are sent to. I’d been on the floor for over 24 hours, on my left side. I hadn’t broken my hip but the paramedics weren’t sure because I was in so much pain the couldn’t examine me properly and I was too dehydrated to get a cannula in for pain meds. The first thing I remember was coming round in an assessment ward and one of my sons sitting there with me. I spent 4 weeks on a kidney ward having dialysis because muscle had broken down in my right thigh with had stopped my kidneys working. I then spent 6 weeks on the orthopaedic ward where the broken hips go, and they were treating the large pressure sore on my hip . I eventually was discharged and community nurses dress my wound every other day. It is now 1cm across by 5cm deep. I’m waiting for a surgical appointment because I think it will need cutting open again. The reason I use crutches, and will have to forever, is because lying in the same position for so long stopped the nerve in my foot working. I can’t move my toes on that foot and only have a little sensation in it. Hope this hasn’t been too long!

Blackberrywine profile image
Blackberrywine in reply tohelenlw7

Not at all...I asked! You must be one tough cookie that's all I can say! I'm sorry you have so much going on medical wise. I hope you are not in too much pain.

helenlw7 profile image
helenlw7 in reply toBlackberrywine

I’m in quite a bit of pain because I was in hospital again in April, this time with pneumonia- I was in for 6 weeks this time, but all my RA meds were stopped, and it took a while for me to be allowed back on my methotrexate because of the wound on my hip. About 6 weeks ago I started on my 3rd biologic, Cimzia, and I don’t think it’s working yet. Also I was due to have a knee replacement last June but I was in hospital then, and now they won’t do it because of the open wound on my hip!

Fluffontoast profile image
Fluffontoast in reply tohelenlw7

Oh, that sounds awful. I hope you're finding something to be positive about. Sending you best wishes x

Blackberrywine profile image
Blackberrywine in reply tohelenlw7

I'm really sorry to hear that Helen. I hope things get better for you very soon.

helenlw7 profile image
helenlw7 in reply toBlackberrywine

I’ve had a lot of work done on my large Victorian terrace including new windows, rewiring and a downstairs shower room will hopefully be finished in about 6 weeks and I can move home which will be brilliant.

Blackberrywine profile image
Blackberrywine in reply tohelenlw7

Oh yes. No place like home.

MadBunny profile image
MadBunny

Fantastic. I do cross stitch or crochet - I'm very fortunate that my hands aren't affected . I also make cards.

Blackberrywine profile image
Blackberrywine in reply toMadBunny

I admire folks who can knit, crochet and sew. I can't do any of that. What do you make?

MadBunny profile image
MadBunny

Sorry - the picture wouldn't load the correct way up 🙄

The crochet and knitting is quite simple: scarves or squares to make blankets. Something that I don't have to concentrate on.

I don't do as much cross stitch as I used to

I usually make gifts, like wedding keepsakes. I'm currently working on a picture for my friend's 70th birthday.

I recently went to a workshop on 'mindful stitching'

The emphasis being on the process of stitching without worrying about the end product.

Mindful stitching
Blackberrywine profile image
Blackberrywine in reply toMadBunny

That's beautiful. What a lovely gift to receive.

MadBunny profile image
MadBunny in reply toBlackberrywine

Sorry to mislead you you - I didn't explain properly - that was the one we made in the workshop☺️ I'm inspired to do more, though.

Blackberrywine profile image
Blackberrywine in reply toMadBunny

No problem. You said you made gifts. I love hand made gifts. My neighbour makes me a pot or bowl every year at her pottery course. My house is getting a bit full! 😆

Runrig01 profile image
Runrig01

I distract myself, doing short exercise classes, at home, with the Apple fitness app. I can do 3-4 10 min sessions. Other than that baking and cooking, or reading my kindle. I have an ebike, and sometimes go out on that along the seafront, I find the sea calming, especially when you get away from the crowds. 🤪👍

Blackberrywine profile image
Blackberrywine in reply toRunrig01

Ah lovely...the sea front. Very calming. 10 mins fitness is amazing. I do about 2 mins on the trampoline about twice a day. Can't imagine doing ten!

Runrig01 profile image
Runrig01 in reply toBlackberrywine

I’m sure I’d struggle on a trampoline 😂🤗

AgedCrone profile image
AgedCrone in reply toRunrig01

I know I’d break my neck(again)and probably a few other bones as well! I just think what I would do if I could !

Blackberrywine profile image
Blackberrywine in reply toAgedCrone

You don't have to bounce on a trampoline. We are all at different stages. I'm sure you do other things for mind and body. There are wonderful gardeners on here. I've seen some of their photos.

I'm a bit fearful of dementia. It's in my family. I feel it's important to keep as active as individually possible, both physically as well as mentally. I think we have so much taken away from us. I had four years of not being able to do much.

AgedCrone profile image
AgedCrone in reply toBlackberrywine

Well I’m an optimist…my next BIG birthday is the nine oh! I have never had to wonder what to do to keep myself occupied….I just get on with what presents itself. I really miss the energy of being young…but that’s life - innit?

Today the sun is shining here so I will play at being a gardener. ..only sometimes successfully. Right now I am happy that some very special cream & pink Geraniums - are actually blooming - after a lot of TLC…..because a mindless courier put them in a garden box on my lawn…..but never left a delivery slip…& they lived in that box in the dark for a week before I found them! So maybe I have green fingers after all?

Blackberrywine profile image
Blackberrywine in reply toAgedCrone

Yes, I miss that energy too. That's a good age! Must be doing something right. Poor geraniums. Good you've nursed them back to health. I love geraniums...lovely colours. Annoying how parcels are just dumped these days.

AgedCrone profile image
AgedCrone in reply toBlackberrywine

The Geraniums are a new strain called Rosebud Astrid…they are pink & cream & supposedly flower until November & are perennial .If you search on Plants2 garden you will see them…they are so pretty…I would add- mine are nothing like their photo….Yet???

Blackberrywine profile image
Blackberrywine in reply toAgedCrone

Thank you. I will look them up.

Madmusiclover profile image
Madmusiclover

that’s stunning! I walk as much as I can and am quite a serious amateur singer/musician.

Blackberrywine profile image
Blackberrywine in reply toMadmusiclover

How lovely. What kind of singing? What do you play? Must be so rewarding.

Madmusiclover profile image
Madmusiclover in reply toBlackberrywine

Mostly early classical music in small ensembles. Sadly can’t play the instruments I used to as I can’t hold them; clarinet; guitar. Can still play piano a bit.

cyberbarn profile image
cyberbarn in reply toMadmusiclover

My favourite type of music!

Blackberrywine profile image
Blackberrywine in reply toMadmusiclover

Singing in a choir or small groups is great fun.

ruth_p profile image
ruth_p

I do embroidery

Embroidery
Blackberrywine profile image
Blackberrywine in reply toruth_p

That's lovely! So delicate.

ruth_p profile image
ruth_p

And craft

Tin can owls with felt succulents
Blackberrywine profile image
Blackberrywine in reply toruth_p

Love it!

nanny_bee71 profile image
nanny_bee71

Wow that's amazing - I can't even draw a pin man. My relaxation comes from x stitch (when the eyes are behaving) and making friendship bracelets for a local charity shop. Plus I love the challenge of a jigsaw

Blackberrywine profile image
Blackberrywine in reply tonanny_bee71

To be honest I can't actually draw true to life. I'd love to be able to do landscapes in pen and ink. There's a lady on here who does amazing landscape painting. That's a talent. I just doodle.

I don't know how you do jigsaws. I get so frustrated with them. People find them very relaxing and they are good for the brain. Friendship bracelets sound fun

AgedCrone profile image
AgedCrone in reply toBlackberrywine

I still have nightmares trying to draw a deckchair & a wheelbarrow….which were the requirements for O Level Art way back then! I failed!!

Fluffontoast profile image
Fluffontoast

That's amazing! You should publish a colouring book!

Blackberrywine profile image
Blackberrywine in reply toFluffontoast

Thank you. I must say I find real peace and joy in doing them.

Fluffontoast profile image
Fluffontoast in reply toBlackberrywine

Thank you for refocusing my mind on the things we can do rather than the things we can no longer do xxx

Blackberrywine profile image
Blackberrywine in reply toFluffontoast

You are welcome. I started drawing because I was getting really low in mood. Sometimes illness can feel that's all you are.

StormySeas profile image
StormySeas

I love this, and the post!

It's inspiring to see the talents hidden on these pages, and to see the other side of illness and where it can take us. I really enjoyed seeing all these pictures, and hearing the stories behind them. We are amazing people and our achievements and tenacity are mind bindboggling. Thnaks for sharing! X

Blackberrywine profile image
Blackberrywine in reply toStormySeas

Yes indeed!

hazelcats profile image
hazelcats in reply toStormySeas

And I always think it honestly doesn't matter if you feel you ' aren't good enough '. There's no such thing in my book! I genuinely feel the real value is the enjoyment of just doing an activity craft rather than an end result 😍

StormySeas profile image
StormySeas in reply tohazelcats

Absolutely, so true! It's the doing that counts 🙂

Fluffontoast profile image
Fluffontoast

I'm rather unmotivated when it comes to crafts but I love experimenting with food and listening to podcasts. Keep meaning to get back to my piano. Don't have a trampoline but I bought a large fitness ball which is quite satisfying to bounce around on! Can recommend!

Blackberrywine profile image
Blackberrywine in reply toFluffontoast

That sounds great! Anything to keep moving. I love podcasts too.

cyberbarn profile image
cyberbarn

I am doing a PhD. yep, I need my head examined!

But I am also knitting while listening to lectures and for webinars when I don't have to take notes. And I never gave up home educating my son (now 27 but disabled) so we listened to podcasts together.

I used to spin wool and weave, but I struggled to combine the PhD with that so I reckon I have two more jumper's worth of PhD to go before I start building up my leg muscles with the spinning wheel.

Blackberrywine profile image
Blackberrywine in reply tocyberbarn

Wow...Good for you! May I ask what you PHD is in? I've always wanted to try spinning wool. Your son is very fortunate to have you.

cyberbarn profile image
cyberbarn in reply toBlackberrywine

The Phd is in computing, but I am on the Human Computer Interaction side of thing, looking at knowledge and how we collect it and how we can represent it. There is so much more to computing than writing software, it is also about how humans work with the software. Sadly many people in computing are young, male, and just want to code and then people wonder why computers make life worse not better! We need more women, especially older women, in computing.

As for spinning, it started as a home education project when the farmer next door gave us a fleece of one of her sheep (they were getting no money for them) so we learned all about wool, spinning and weaving. My son moved on of course, but I caught the bug!

cyberbarn profile image
cyberbarn in reply tocyberbarn

Sorry, forgot to add, just to bring it back to computing, one of the first 'computers' was the jacquard loom. I would love to have one of those!

Blackberrywine profile image
Blackberrywine in reply tocyberbarn

That's fascinating. I've used computers for work, but more recently for simply researching things of interest. There's a dark and light side to computers. I've learned loads via the interwebs! 😁

Artfanatic profile image
Artfanatic

Hi Blackberrywine the pen & ink drawings are lovely & so inticate! I used to do similar pen shapes when I was a teenager doodling during boring classes! I hope you keep it up. I'm very surprised you don't have a TV, I take it that's by choice. I started watercolour painting classes at a local art group aged 50 but I do oil painting now (aged 70) & I started at an Art group who did mainly portrait painting which was a real challenge & quite frightening for me. I feel comfortable painting animals, landscapes & flowers but not people/portraits! I've now completed 2 & although they take a long time to get right I'm thrilled with the results. It's good to try new things & stretch ourselves & it really helps me to switch off & concentrate on something else. I hope you continue with youre art & others feel encouraged to have a go. I find it so relaxing & you forget all you're troubles & aches & pains!

Blackberrywine profile image
Blackberrywine in reply toArtfanatic

Yes I got rid of the TV about ten years ago. Oil painting sounds wonderful. Drawing people is so difficult. I watched a few online tutorials and the chap teaching made it look so easy. It wasn't!

You are right about it distracting from pain and worries.

Blackberrywine profile image
Blackberrywine in reply toArtfanatic

Yes I got rid of the TV about ten years ago. Oil painting sounds wonderful. Drawing people is so difficult. I watched a few online tutorials and the chap teaching made it look so easy. It wasn't!

You are right about it distracting from pain and worries.

Green230461 profile image
Green230461

I love that! You could sell them for extra Christmas pennies or give as gifts. I play Sherlock on the iPad looking for pictures of things oddly relaxing 🌊

Blackberrywine profile image
Blackberrywine

Thank you. I've done ten now. Including a gecko and a humming bird.

I will look up Sherlock.

Otto11 profile image
Otto11

That’s really great. Love it. I used to paint but never have time these days. I would love to try this. I used to trampoline many years ago but gave it up after a backward somersault went wrong ( I under rotated) causing a nasty break in my elbow. Day before my daughters 4th birthday too poor hubby was up all night attempting to make cup cakes etc He did well

Blackberrywine profile image
Blackberrywine in reply toOtto11

Ouch! It's small trampoline with a handle. I can just about bounce on it! 🤣 Do give doodling a go. It's very relaxing. I had to purchase a tabletop eisel for drawing on as bending over a table was killing my spine. I got a very cheap one from tge Works. Just the job.

Otto11 profile image
Otto11 in reply toBlackberrywine

It looks great I really must try it.

MissMinto profile image
MissMinto

Zentangles! There’s lots of ideas on YouTube and Instagram

Sheila_G profile image
Sheila_G

That is fantastic. Did you have a pattern to follow or have you just done it randomly, either way, it is great. I do some papercrafting but not as much as I used to. I love genealogy. My brother and I have traced ancestors, on my dad's side, back to the year 800AD. It is totally fascinating but all consuming, as are most hobbies. I hope you carry on with your drawing, you are good at it.

Blackberrywine profile image
Blackberrywine in reply toSheila_G

It's random, but I did watch a few zentangle tutorials on the old tube first.

Amazing traving back your ancestors!

katieoxo60 profile image
katieoxo60

I pass my time when not at medical appointments dealing with moans groans and complaints both mine and other peoples. I also have some small garden tasks that are mammoth for a disabled person like myself. At night I sometimes play games on my phone or listen to music videos from my family in Australia. There are always other things to occupy our minds besides TV or computer. And one last thing I try to do is help a freind have a shower once a week , not easy when you have to climb in a bath to do it. I have a walk in shower myself. Love your ink drawing thank you for sharing.

Not what you're looking for?

You may also like...

Still not well.

Went to the hospital to see my rheumy nurse and also saw my consultant as well. They are going to...
sylvi profile image

Not well at all friends......

For the last few months I have been weened off Prednisolone by my Rheumy nurse. I'm going on Gold...

Well proud!

Morning peeps- hope you're all up and at 'em? 😁 Just gonna take a moment to blow my own trumpet...
Moomin8 profile image

Really struggling

Hi everyone. the side effects I am having from steroids are just awful. I'm in a total mess. My GP...
maywing profile image

NEW SITE... NOT GOING VERY WELL.....

Well what a palaver,already i have had messages from members via f/book who can't get logged in and...
sylvi profile image

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.