Hi all, Not been on here for a while.
I have sero neg rheumatoid arthritis, diagnosed 2010.
Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw.
But bloods show no inflammation, not sure what is going on, have an appointment in two weeks with rheumatologist.
Any thoughts please?
Surely something would show up in bloods?
what’s a zero negative Rheumatoid Arthritis please ?
Do your bloods usually show up inflammation, some peoples don’t. It’s good you’ve got an upcoming appointment, hopefully whatever is causing it is short lived.
I don't know as it's been a while since I've had a flare.
I replied to you but don't quite know where it has gone to? It will probably turn up as a post.
Reply to pool009. I don't think I can help but I was interested as for a couple of years I was told I had Sero Negative arthritis. I am told I have Inflammatory arthritis now, plus Sjogrens. I don't feel I have the right diagnosis. I seem to get my pain in my muscles and soft tissue. I have some sort of inflammatory arthritis in my right knee which keeps swelling. Recently I have been having pain in my hips, shoulders and hands. I had a blood test done and my ESR was 16. I feel a lot of pain that high as normally it is about 6. Things have got more complicated recently as I have been diagnosed with FND. A physiotherapist thinks I have fibromyalgia and as I started out with Polymyalgia I am really confused. I hope you get some answers.
Thank you for your reply, I have just found out at Gp this morning that the inflammation markers are very high at moment after having blood tests for something else. So I guess they've got up since test 2 weeks ago
It's not good but at least your GP can't argue with that. I hope he or she can help you.
Not always, apparently. Mine (Undifferentiated inflammatory arthritis) was found on ultrasound scan and when I protested that my bloods were OK I was told something like 40% of people with confirmed RA don't have any sign in thd blood. I did however test positive for antibeta2 glycoprotein antibodies and low platelets...and low white blood cells...and have Raynaud's. Jigsaw pieces of autoimmune problems which I don't think ever goes away fully.
Hi. I also have seronegative IA. Out of interest, have you been having any treatment at all since your last flare? And do you know what might have triggered this flare? I am getting myself off hydroxychloroquine but not sure what to expect in terms of frequency of flares and how to manage them in future. .Your post seems to indicate they haven’t been that frequent? Thanks
When first diagnosed was tried on hydroxychloroquine but had a reaction and another eventually on methotrexate injections and leflunamide, then went into remission quite quickly I think then weaned off methotrexate then stayed on leflunamide then two years ago started taking leflunamide every other day and now this is where I am. Now am suddenly flaring, no idea what has triggered this.
It does not always show up I bloods. I had active ra in my foot but blood result ok. Ask for scans of the problem areas.
Hi I also have RA , it was diagnosed 6 months ago and when I have flare ups nothing shows up in my bloods. I think this is par for the course .
I have seronegative RA, apart from a low White cell count my blood are normal, whether I'm in a flare or not.
Hi I have the same and mostly ok but have had flare ups and bloods have been ok. I have had Kenalog injections which have helped but can't be given unless at least 6 months apart and no joints hot and showing infection. I try not to have Kenalog steroids unless really bad. Has helped though!
Thank you all for sharing your thoughts and replies x
Hi everyone, I too have sero Neg IA! gosh there are a few of us about. I take MTX injection each week but I still live with pain and stiffness. Try to ignore it and keep active as I can. I didn't like Sulphursalazine as it caused trouble sleeping. I might have to try the arava again soon, Just sick of drugs and side effects like we all are. Keep your chin up everyone! dumb immune system needs to stop being silly!
I too was tried on sulphursalazine after hydroxychloroquine, both gave me skin rashes I think, long time ago now.
anti-tnf and remission
Blood tests don't show a flare
I get a rash on my face when I flare
Flare
