Hi All.
Been on Toc injections for a month now having switched from Baricitinib which stopped working after three years ( usual time frame for everything to give up on me) but not sure I like this new drug very much. My head which has had fog in it for some time and particularly after having Covid in Feb is worse than ever. When I came off Baricitinib for two weeks prior to Tocilizumab my head cleared like magic and I was normally functioning again and able to think clearly. A month on Toc and I’m worse than ever particularly after the injection which I do at night.
Not only is my head foggy, I feel exhausted, my balance is slightly off, my skin has peeled from my fingers, I’ve had a rash on my leg and so far it’s doing zilch for the RA!
I know people will say ring rheumatology but I need to give this drug a chance to work. I’ve had everything ever invented (had RA for over 33 years) and I really want to know if anyone else who has recently started on Toc or been on it some time feels about it and how you felt when you first started it. As far as the side effects go it’s prob par for the course but Baricitinib worked immediately, not a side effect at all in all the time I took it and I’d quite like to still be on it……..hey ho.
Value your input and hope this is an early day start off and it’ll get better. It’s the fog in the head I hate most! Huge thanks.