Started Benepali: Well just to let you all know I at... - NRAS

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Started Benepali

Carolsos profile image
19 Replies

Well just to let you all know I at last injected Benepali today after waiting about 10 weeks. I kept ringing my Ra nurse and she rang back today. I said I cannot wait any longer for the nurse to ring me can I just inject as it's not much different from the other injection. She said I could if and that she would have taken it too. I left Benepali out for an hour and it didn't hurt or sting. So I will see how I get on from now. I am in a lot of pain atm. I have a lot more swelling with having to wait so long. Take care everyone

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Carolsos profile image
Carolsos
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19 Replies
springcross profile image
springcross

Good for you Carol, crazy that you had to wait so long. I hope you get on really well with it. Good luck.

Lolabridge profile image
Lolabridge

Hope it gets to work quickly for you. 🤞

Madmusiclover profile image
Madmusiclover

Fingers crossed for you. 🤞🏻

Neonkittie17 profile image
Neonkittie17

Hope it starts to work soon. 🙏

MadBunny profile image
MadBunny

Good that you've started on it. I hope that it works for you, and starts working quickly .Take care x

Carolsos profile image
Carolsos

Thank you everyone, take care

sylvi profile image
sylvi

It is just another prick isn't it darling. You know what you are doing darling and i don't see why you need to see a nurse to something you already do darling.xxxxx

allanah profile image
allanah in reply to sylvi

🤣🤣

Carolsos profile image
Carolsos in reply to sylvi

I totally agree sylvi so annoying having to wait all this time.

Bluebird335 profile image
Bluebird335

Works well for me, so hope you are the same! Wishing you well!

Wobbies profile image
Wobbies

Well done. Hope it kicks in quickly.

allanah profile image
allanah

So pleased, it just seems to have been ages! Rest drink water and it will get into your system and good luck !

Mmrr profile image
Mmrr

🤞 for you

oldtimer2 profile image
oldtimer2

Well done for being assertive. It is too bad when we are treated as less than equal partners - we have to manage ourselves every day and are expert on ourselves, they see us infrequently but are good sources of expert knowledge generally.

Feank profile image
Feank

Well done! It works for me hope it does for you. How did you do it so that it didn't sting!!? Happy Easter 🐣

Carolsos profile image
Carolsos in reply to Feank

Hi there, I left it out of the fridge for 1 and half hours and it seemed to do the trick and when I inject this week I am leaving it out over night. So I will let you know how I get on.

medway-lady profile image
medway-lady

Fingers crossed it worked well on my RA but took a while to really kick in and caused a lot of UTI's so keep an eye on that and a drink as much water as you can. I've been using Abatercept since January and it also seems slow to work so patience is key. xxx

Bagpuss2021 profile image
Bagpuss2021

I had to come off benepali because of the pain and stinging after injecting. I have been prescribed a different injectable without the ingredients that cause the stinging. the only problem I have now is I have been waiting for a month to get a script and delivery.

Carolsos profile image
Carolsos in reply to Bagpuss2021

Hi there, oh dear that is not good, hope you get your script very soon. The doctor's that make us wait don't realise how much pain we are all in with all this waiting around.

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