Hi everyone! I havent posted here before but feel its time as im just getting so frustrated! So im sorry for the rant but here goes-
I’ve had RA for 7 years, im now 23. I was on humira until about a year ago when it stopped working. It seems after that, my nhs experience has just been bad ontop of bad.
I was on the waiting list for 6 months, without any medication, before i got to see a consultant. I finally got to see him and was prescribed benepali! It then took 3 months to get my prescription through to healthcare at home!
I finaly got my injections delivered, but had to wait two weeks for an appointment with a nurse to supervise me take them. She then cancelled on me, twice. So i took it myself.
I find the benepali injections excruciating compared to the humira ones! Every week gets worse and worse.
Ive tried to call my rheumatology hotline but its always just an answer machine and noone ever gets back to me (Its been the same since i was diagnosed). Ive found it really hard to get support off anyone since these new injections.
So now im here. Two months into benepali, with a stinking cold thats had me in bed for a week, a fluid filled knee and an unhappy brain.
If anyone has any positive benepali stories id love to hear them! So i can imagine some light at the end of this sewage filled tunnel.