Monitoring benepali : Morning all , hope your all... - NRAS

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Monitoring benepali

Billybongos
Billybongos

Morning all , hope your all enjoying the sunshine .I'm going to start benepali in a couple of weeks , I thought it would be the same procedure as methotrexate injection were you see nurse she shows you how to do it and bloods every couple weeks, but I've had a letter from the hozzy and they have booked me in as a day case , I'm wondering why and is this normal?

12 Replies
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I've just been through this as due to start on Enbrel. My first appointment was a day case where they went through a big checklist, took loads and loads of bloods, did x-rays and so on. Before you can actually start on it they need to make sure you do not have any latent infections or other complications.

I've had the xrays and bloods been to a appointment with clinical educator to explain how it works got to see rheumatologist next week , then more bloods 4 days b4 being admitted as day case just didn't realise i would have to be admitted I no its only day care but ....

Well mine wasn't actually being admitted - it was called day care, and it was the room where people were having their infusions and the rheumy nurse was. I basically sat in a corner until sent off for x-rays, sent off for echocardiogram, sent off for bloods, etc etc. All in all was there for maybe 3 hours. Other people popped in just for a steroid jab.

I've had the xrays n bloods n got have the bloods done 4 days b4 I'm admitted 😨 it defo says admitted I'm prob panicking for nothing , my stomach tips over n panic whenever I go the hozzy so the thought of staying there to long isn't going happen I will ring tomorrow for time scale thanku helixhelix

Sorry wasn't being clear....I was admitted to day care, but the reality was completely different so it wasn't like being admitted at all. No bed, no undressing, nothing like that. Just sat in a corner of a small ward.

I can manage that lol will ring hozzy tomorrow and see what they say thankyou

It was a bit different for me when I started on it. I had to go for a chest xray, and then go to my local surgery to get the nurse there to do some blood tests. Funding was applied for, and given, and then Healthcare at Home rang and arranged delivery of my first batch of Benepali. The day after it came, the nurse came out and asked lots of questions and gave lots of information, and then supervised me doing the injection. She stayed a while after to ensure I had no bad reaction. Same again a week later, nurse came, supervised me doing the injection, and stayed a while. On the third week I was on my own but they rang and asked if I was ok after I did the injection.(I had to tell them what time I was doing it so they knew what time they should ring me.) Not sure why they want you in as a day case but each area is probably different. Could it be because you have had bad reactions to previous meds though? I now have monthly blood tests, same as when on mtx.

Billybongos
Billybongos
in reply to SnooW

I was expecting a similar thing I've had bloods and xrays been approved seen clinical educator got see rheumatologist next week n booked in for day care week after its beyond me what's going take all day ?

SnooW
SnooW
in reply to Billybongos

I hope you'll be able to tell us cos I'm intrigued!

Billybongos
Billybongos
in reply to SnooW

I will let you no im I'm going ring the unit 2moz

Hi I've rang the hozzy about daycare , they said I will be seen by a dr on the day observations done for a few hours and if all ok can have first injection no more than a few hours phew lol

This was so different when I started Enbrel about twelve years ago. I had a chest X-ray and then bloods done by gp. My rheumy said everything was fine, the delivery company arranged for a nurse to show me how to inject. She explained and I did it myself. I was changed to Benepali in March this year and then back to Enbrel in May.

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