Rinvoq

[Storms57]

How many people hear have taken the drug Rinvoq for R A. Just been offered this as a new medication. But concerned about the side effects.

[Bessieboo1]

I am currently on Rinvoq, I have been on it nearly 6 weeks. I have just started to feel the benefit of it which is brilliant as I was feeling pretty crappy. I was advised by the biologic nurse to take it before going to bed to reduce the side effects. I had a couple of horrible spots for a couple of weeks but these have gone and the only real side effect I have is a muzzy head, it’s not there constantly and am hoping that too will disappear. Best of luck . Xx

[KittyJ]

if you put that into the search box and filter for NRAS then all the past posts about it will come up. Try not to dwell on what side effects you could have, every drug has possible side effects but chances are you won’t have any.

[oldtimer2]

Rinvoq is also known by its generic name upadacinab, so putting both in the search box will find you previous posts on this JAK inhibitor. That will give you people's personal experience. My sister was on this for a bit, but it wasn't effective for her and she's now on sarilumimab injections with good control.

It's a pill in an easy to open container, they have actually thought about who will use it! It is a biological treatment and very effective if it works for you. Have a look at the NRAS website for accurate balanced information.

[nomoreheels]

Hiya Storms57, welcome. As well as the search box if you check under Related Posts (on my iPad to the right of your post) you'll find lots of previous posts about Rinvoq (upadacitinib) going back around 4 years when it was first licensed for use in rheumatoid diseases. It's one of the newer meds, a tablet & among the first Janus Kinase (JAK) inhibitors approved in the UK. It's often used in conjunction with MTX. This explains in detail nras.org.uk/resource/jak-in...

Whilst we should be made aware of side effects, why we're supplied with a patient information leaflet with our meds, it's not best to focus on them, even though I know it can be difficult, but you'll know that from sulfasalazine & hydroxychloroquine. JAK inhibitors seem to be quite well tolerated, but it's one of those things, just as RD affects us in different ways & extremes so do the meds we take. What one person tolerates well another doesn’t, so whilst sharing what side effects may be experienced it's not always the case you'll have them, or if you do they maybe tolerable. Probably going over what you already know!

I hope you find it helpful being here & upadacitinib brings you better control.

[wilbertjellyfish]

I tried it, no side effects.....but no benefits either as it didn't work. Still tablets are easier than injections..I'd love a tablet that would work. Good luck with it.

[Storms57]

Thankyou all for your comments have put my mind at ease on what to do .

[Gracie2019]

I have been taking Rinvoq for going on three years. It is the ONLY med that has worked to relieve 90% of my initially debilitating RA symptoms. The only hurdle I have had in the US is the exorbitant expense. I apply every September to Abbvie the manufacturer and have so far received the medication for free. They are fairly generous in their qualifications for assistance

Thus far, I have had no noticeable side effects at all. As others have stated, what works well for one person may not work for another. Best of luck to you.

[Rainyda]

It didn't work for me!

[Mccubbin]

Hi everyone.... I have been on rinvoq just over 3 years now .... With methotrexate injection. It does work that good for me. My consultant want me to stay on it till new drug comes out, as I have been on a few last count 13 . X