Wrist is swelling again, an ache in my right eye (sjogrens, I think)...

[Brushwork]

It is early days on Tocilizumab though, only 4 doses in. On the plus side; morning stiffness hasn't returned.

Naproxen today... it will help my eye.

It's a gorgeous looking first morning of British summer time here on the Moray coast.

Go gently through the day

[bubblyalex]

🤞🏻 it’s a temporary blip 💕 I start it tomorrow ...

[Brushwork in reply to bubblyalex]

Good luck. I haven't had any nasty reactions to it, or notable side effects... hope it goes well.

[bubblyalex in reply to Brushwork]

Thank you. Super crossed the fingers are and for you too 🥰

[springcross in reply to bubblyalex]

Good luck ba, hope it works and works well for you. xx

[bubblyalex in reply to springcross]

🥰 very hopeful I am. Thank you springcross. I’ll hopefully be around more again too. 🤞🏻 keep well 💕

[springcross in reply to bubblyalex]

You too ba. xx

[springcross]

I hope it settles down soon Brushwork. x

[Mmrr]

Hopefully just a wee minor set back 🤞 and things settle for you.

[Summerrain14]

I really hope it is a blip and your meds start to work their magic for you. x

[allanah]

Great news thinks are starting to improve in mornings but dont ignore a sore eye .If it gets red or vision is worse or its painful get checked asap.

[dwsurquhart]

Been on toci for 3+ years now. It is the only Med that has worked for me. It has made me retain water for the first 2 years so I took furosemide for 3 days after each infusion. I no longer need to take the furosemide. Feel much better as a result of the toci. I still have morning stiffness, I think it is because my bed needs to be replaced.

Cheers

[Brushwork in reply to dwsurquhart]

I will stick with it. It does seem to help and it is early days. I am self injecting with a pen, my nearest rheumy dept is 2 hours away, so infusions would be a pain. Fingers crossed that it will all settle down.

Thank you

[dwsurquhart in reply to Brushwork]

I have heard from some of my rheumy's other patients that they did not get the same relief with subcutaneous self inject as they now do with the Infusion. 5 hour return trip to have a 1 hour infusion is a bit excessive I do agree. Is there a medical office near where you are that could do the Infusion for you?

[Brushwork in reply to dwsurquhart]

I guess I will have to give it time and then have a discussion if things don't improve. I am still crossing my fingers.

[Maggsie in reply to dwsurquhart]

How interesting about the water retention, I'm having the same issue but never really connected it with the tcz. I'll need to speak to my rheumy nurse.

[Sarahg62]

Beautiful there. I have family in Elgin. They own the Sunninghill hotel.

[Brushwork in reply to Sarahg62]

I do love this area. The weather is mild and the views are stunning. I see the Aurora, dolphins and whales, deer and red squirrels regularly. It's just wonderful. I wake up to a view across the firth to the mountains of the highlands. My dream retirement home...

[Silverpixie]

It took 4 months of weekly injections to work for me but wow does it work.

[Rokosaki]

Today I took my 12th monthly infusion of TCZ (450mg) and my rheumy says I am on remission, it took like 4 to 5 months to feel the difference, my CRP dropped from 80 to 4. I felt really lousy by the second month on TCZ, like you, my left wrist was hurting so bad I couldn't sleep properly. I totally recommend it, TCZ was the life changing treatment for me! I don't even need prednisone anymore, just the monthly infusion. No side effects.

[charisma]

I hope improvements continue. Saturday was beautiful down in Dumfries & Galloway but Sunday much less so; windy and wild and wet. I am in contact with a few folks up there eg Portsoy, Gardenstiwn and Cullen. Must visit when I’m fully recovered; Dundee first though, my youngest has lived there since Uni days. 💐