At my last GP'S I had a book and my last blood results were entered in when I want for my next blood test. I could also book next blood test , everything seems easier.
Moved house, moved GP'S and went for first blood test with results book only to be told they didn't fill results in, didn't have the time and couldn't book next blood test, didn't do bookings so far in advance.
Feel lost now...only time I know there is anything wrong with my blood results is if I get a call from G P surgery of which there have been many, just lost interest now, don't bother trying to keep tally of when I need a blood test or how I'm doing. Seems more a waste of surgery time ,them having to ring me and send letters to say that I need a blood test.
Feel like I am not included in my treatment,but thinking of asking for all my results when I have a blood test would have to ring surgery and apparently I can get them from reception. Only problem is,where would I get one of the little books with all the things they read in the blood ? Anybody know?
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Sorry to hear this. Frustrating indeed. 🤨 I get my results printed off by the rheumatology secretary and sent to me by post .. Usually every three months. They said it’s not a problem and are very amenable. Another post this week had some good info re being able to log online via an app which I think you get the details from your GP (unless your GP practice dismisses that too 😑) and you can see your own results on your laptop/phone etc. that way. Hopefully someone on here will let you know those details as I don’t have them. I’m going to look into that too but my rheumy nurse is fine about posting them and if I’m there for I get them printed off automatically by her.
Can you speak to your rheumy secretary and ask them, explaining the GP is unable to help with this due to their policy. (Could it be due to the pandemic they are not doing blood results? ) The online way sounds better than what I do and I think I’ll look into that myself. Your rheumy nurse should be able to give you a blood results booklet to record the results and at the side of the name of the tests there is the normal range of results/ranges and a little explanation usually of what each test means. Hope you can get your results.
Hi, I was given a yellow book/card by rheumatology to write blood results in, it's called a Rheumatology Shared Care Monitoring Card. That was when I started on MTX, I'm not on it now and don't need regular blood tests so don't use it anymore.Maybe rheumatology would give you one? also you could make up your own form or spreadsheet, I think someone posted their version on here a while ago?
I can tell you the test names on it if you want to make your own form.
I have had the exact same thing at my old GP’s they used to come up on an app I had so I could see them. Now moved house and can’t see them. I generally ask to see them but I am met with not a great attitude.
My GP practice doesn't participate in the shared history system. My son is able to access all of his info online, so is able to monitor his own progress, but he lives in greater London. It always seems a bit unfair, doesn't it...because after all, it is OUR information. I can't get a print out now as I did with a previous GP but the receptionist will look up an individual 'single' result if I ring her when they are not busy. I can order repeat prescriptions online which are then sent to my preferred surgery electonically, which is a great help.
Good morning 🙂You have a right to see your medical records, unless there is something that they feel would be a detriment to your wellbeing if they were to share them.
This is a great leaflet - it's pdf, which I don't seem to be able to upload on here. My sister was having trouble with registering at her gp because she doesn'thave either a driving licence or a passport so was having trouble with producing photo I'd. After reading this, she is now registered!
Simply type 'Getting started with GP online services ' in Google and this will appear - like magic!
I can understand them not having time to write them down in a book also having to provide a book isn’t what they do anymore. It’s all on computers which is a lot better. That said they can print them off or email them to you. Your gp has to approve them being given to you and you are entitled to your blood test results. Mine are emailed to me every time... sometimes I have to email or call them to prod them. You need to speak to your GP (and only them) to organise it. No one else can authorise this. They will all say no and you will be arguing fruitlessly because their hands are tied. They have to have GP approval. A print off gives you all the info and what the ‘normal range’ for everyone is. You won’t need the book that you used to have.
Most GP practices will only do bookings a month in advance I think. I just contact reception by email or phone to ask for an appointment and when it has to be done by. I don’t wait for them to contact me. It sounds like they don’t understand your disease needs monitoring ... but then they are only receptionists and so they wouldn’t. I hope this helps 🤗
If you are comfortable using the figure route to access all your records - including repeat meds, consultations and test results - download the NHS App - everything will be in there for you to access anytime. In our area, as the monitoring blood tests are essentially requested by my rheumatologist I book my own blood test when it’s due via the hospital dedicated booking line.. works well. Hope this is helpful. Good luck
Are your blood results checked by rheumatology department as well as GP? I book mine for each month just after having one. I don’t get a record of results but get contacted if there is an abnormal reading by GP or rheumatology department.This suits me fine but I do phone GP to know results of any non routine testing. As all result records are on computer DRs can check these at anytime x
Hello there.My bloods are done at the GP’s by the practice Nurse.
Because of Covid they have gone from wvery 8 weeks yo every 12 weeks. Its my responsibility to book them and I phone a week to 10 days in advance and get an appointment.
Im on Benepali snd Hydroxy but with a history of unpredictable Liver function.
The test results come back about 24 hours later via the Patient Access App so I can track my results. It comes with graphs too and is how I reorder my repeat prescriptions.
Its under the shared pathway so my Rheumatologist has remote access to my test results to check Im being compliant with my drug regimen and to keep an eye on my CRP and white blood cell count and kidney function etc etc.
I have had to plough on past obstructive receptionists who dont have Biologics in their computer drop down menu but with the NHS no one is going to wrap you in cotton wool or come searching for you. You need to take control of your own wellbeing and if you dont get the right answer ask and ask again and if you still dont get the help you need then write to your Rheumatologist.
Good luck and battle on, Covid has put a spanner in all the workings but you deserve to be listened to.
I would suggest writing to the practice manager and explaining to him/her what you've just told us. It's several years since I worked in a GP surgery by my understanding is that the blood results booklet is mainly for the benefit of the rheumatology staff at the hospital but also lets the patient keep an eye on things so they can highlight any concerns. It's reasonable for practice staff to say they can't update the book there and then, as it does take some time and can be really difficult to do during a busy clinic, but there should be nothing to stop them doing it during a quieter period for you to collect at a later date. Your rheumatology department should be able to give you a booklet. A lot of GP surgeries allow patients to register for online access to much of their information so it might be worth seeing if your new surgery has this facility. You should then be able to log in and view your blood results so you can fill in your booklet.
I have experienced the same when I moved house and changed GP’s two years ago. I did feel I had lost control too. But having got to know the GP’s who are excellent and helpful friendly receptionists I am happy to leave my health in their hands. I have blood tests every 3 months and I am notified when these are due and have every confidence that I would be notified if their was any abnormality. I am aware the hospital also has access to the blood results as a prescription has to be issued by them before I have a further delivery of Methotrexate. I hope when you become better acquainted with your GP you will also feel reassured with a different system.
I had the same thing when I started MTX! Lots of drama, urgency and very serious about the log book etc only to have never been asked for it and also wasn't allowed to book blood tests in advance. I don't miss the miss the faffing about.
Hi.. I got my blood book from my Rheumatologist. Also you are entitled to view any info they hold on you. See if they have an online system. Or email and ask for them t reply with the results in the email.. My prob is that I have to ASK for CRP and it does seem like a battle... moved surgeries as my last GP would not do 3 month bloods.... insane!
That sounds really frustrating. You can find a blood book to download if you search on Google.....I did it a few years ago. It's perhaps easier to sign with your GP for access to your records online. I can book appointments in normal times, always order my repeat prescriptions, and check my blood results a couple of days after my blood tests.
Hi I can read my own online. Ask if your doctors do online account. My do I can order my meds and view all test results and used to book appointments before covid arrived
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