Hi all - long time no speak. I’m guilty of disappearing while things were going ok for us.
I’m hoping you guys can shed some light though...
My partner has been taking MTX and benapali for about 2 years now, and most of the RA symptoms have been largely under control for that time, but since early spring this year he’s been really struggling with fatigue.
He had kidney stones in Feb which passed, then the next routine blood test in March showed higher than usual creatinine (112 - it’s usually under 90), and lower eGFR (66 - it’s usually >90) - both of which were highlighted in the monitoring record and the next blood test date says 1 month rather than the normal 3. They actually got him in in 2 weeks, but according to the results in the book, didn’t test him for creatinine or calculate eGFR!!! Since then his blood tests have been every 2 to 4 weeks but there are two sets of results missing altogether and no results in that time (a total of 4 tests) for creatinine or eGFR!! WBC result is low every time - around 3 (he’s normally around 4).
He’s going to ring rheumatology this week to try to find out what’s going on, but in the meantime does anyone know whether the low WBC and/or kidney function of eGFR 66 (assuming it’s still low which we don’t actually know) would cause the fatigue he’s currently struggling with (which is worse than he had with the untreated RA) or the nagging one-sided headaches?
Thanks and sorry for the long post.