Round and round we go..

Hup and down round and round.

Don't mind telling you I have had the worst two pooey days that I have had since the last one! You just don't know what's going to hit you next or when.

I must admit I had a bit of a grumpy one on me Thursday with Mr Shepherd. It was uncalled for (most of the time he causes it! - not really). Well anyway, my tongue was sharper than a ghurkas whatsit. I thought, oh that's not right. I had Friday off and really felt as though I needed it. Taking the good advice you lovely people have given, I spent the day doing not very much and when I did do something I took my time, you know the sort of thing.

Well then I thought I would be set up for Saturday. Oh how wrong could I be. I got up ok. Got to the chicks, miserable and a bit sharp tongued again. Dragged myself through the morning, well actually, didn't. I got so sad and lonely I went to help Mr Shepherd pick his eggies up. By about 12 we had had enough and we went shopping, quite a leisurely affair, although it was busy, we ate in the cafe at Sainsburys I had a lovely warm lentil and feta cheese salad, which was gorgeous. Joints felt achy and head hurt, funny old sort of headache that the painkillers weren't touching by the time I got home, did a couple of hours in chickie house and went home to bed.

Sunday, much the same but worserer. Such a lovely day here but felt awful, cried a bit, declined the offer to go to the pictures in the afternoon - too tired, too achy and head hurt. Had lovely pressies from my beautiful daughter but went to bed at 7.

This morning.... feeling so much better. Now whats all that about?

[emandedmum]

Could be after effects of your medication...I usually feel pretty similar 48hrs or so after mine...? Or a virus? I was struck down by 'something' last week and had to spend a day in bed, awful head, pounding ears, feeling sick, bad tummy...feeling better this week though thank goodness. I'm glad to hear you're a bit brighter today, it's just awful feeling crappy and crabby and I can sympathise - you take it out on Mr Shep but my kids usually feel my wrath Bad, bad mummy! xx

[Tricia-P]

Hi Julie,

i agree with em it could be a virus or your meds, sometimes when we have been particulary painy we take more pills then we can get a withdrawal feeling, I sometimes get a headache and wonder why when we take and i also wear pain patches.

The other thing is my little chickie chaser could it be withdrawal from some of the foods you used to eat, now you are full on with your diet?

Just a thought.

Triciax

[Hidden]

Yes and yes. This all sounds right. Bad mummy Jo, slap your wrists. But I think you have a point.

And Tricia, Mr Shepherd said that because I have stopped having the ibruprofen three times a day, which the nursey told me to take for my bad back which has improved quite a lot, so I thought I would give those amiss and sometimes I have forgotten whether or not I have taken painkiller especially if I am out and about or doing something out of the normal run of the mill of the day and don't take them in case I Have already taken them... confused. yes we all are..

Thanks for your comments,makes me feel better Ta X

[emandedmum in reply to Hidden]

Ow, meany! Yesterday they told me how much they loved me (or liked in my sons case) so I can't be all bad

When I tallied up how many pills and potions I was taking the other day it came to an extortionate amount - scary but necessary sometimes. I have been trying to go without painkillers and take them only when it got bad but RA Nurse told me off and said I hould take max dose thru day to keep on top of pain. Ooops. We think we're doing our bodies a favour not piling them full of c*** and then we get told off!

I've got to go out in the wind and rain so I'd like some sympathy about now pls x x Thank you

[Hidden in reply to emandedmum]

Ok... feeling sorry for you now. Of course your ikkle chicks love their mummy.... grumpy or not. hehehhe x

[Hidden]

write down on a note pad and tick off when you have taken it.. simples but it works//.. have some choc.. im sure thats good for headaches if it is dark and organic lol two pieces only..sulpsalazine can give bad heads if you take that as can too much co-codamol so be careful............

[Hidden]

Alison - you read my mind. Just back from dropping my prescription off at the docs, I accidently purchased some intense orange organic dark chockie pooh. I only had two squares and have hidden the rest so i can't find it! Ha!

Yes I take co-codydramol, not sure what the difference is to co-codamol, but when I mentioned to nursey about taking all the time,she said it's fine, take it all, you need to keep up the pain relief, like Jo says. But because I forget and I feel better sometimes I try and do without. It seems like that might be the wrong thing to do and the cause of my malaise.

I am so glad to have your expert knowledge Alison. It's really good. Thanks so. Julie x

[Hidden]

Hi all. yep always keep on top of the pain with whatever you take, that's what I was always told too.

mand xx

[Hidden]

I used to take co codamol lots 500/30 and ended up with rebound headache.

I am on so many meds now that i use Med sure at Boots. Its really good because they put all the medication into weekly sheets. Each day is divided into morn,lunch,dinner,eve.

I cant really o/d now- which i mistakenly did recently during a brain fog. Not seriously.

I just have a small pill divider for pain killers during the day lunch/tea in my handbag which is labelled each one for each day of the week. There are two doses and I can see exactly what I`v had. Its pretty much idiot proof. Boots liase with my surgery and arrange all the repeats. All i do is collect a month supply at a time. They would even deliver if necessary. I feel better cos I feel that im more in control at the minute even if I am drugged up to the eyeballs!!!

I think there is a link with RA and headaches? Maybe inflamation of the blood vessels. Dont know guessing here. I am so prone to headaches. They have been the bain of my life and I have even been prescribed anti convulscants for them. Just weaning off after 8 yrs of daily use.Prescribed just for migraine and not epilepsy. Wish me luck

xxxx

[Hidden]

hmm .. thats my girl sparkly sparkle.!!. the word is rebound headache.. quite common with co-codamol thats why i take 15/500mg not 30/500mg.. i dont take co dydramol often as it makes mr dizzy , me dizzy duh and spacey.., arthitiis in neck can cause head aches too >>>...

[Hidden]

Hi Julie, hope today is proving better for you. Does sound like the makings of a virus though. Do rest and drink plenty; wash the blighters out before they get hold!

Lyn x

[Hidden in reply to Hidden]

Having felt better yesterday, took another step back today have puffy knuckles and heavy neck? I am swilling the old adams ale as I speak (type) and putting my feet up have another day off! Stepson home on the farm. bless him. Thanks x

[Hidden]

Yep Alison I think i have arthritus of the neck too and that dowagers hump< sexy thing from too many steroids. My hubbies SUCH a lucky man....... I think its really good you know about drugs and stuff and we can benefit from that. Its not like anyone is gonna sue NRAS or anyone else for that matter if you tell us what you know in the capacity of fellow RA sufferer.... It just happens to be u have pharmaceutical knowledge too...lucky us.....

[Hidden in reply to Hidden]

Ditto sparkie ditto x

[rheumatoidymummy]

It's strange how one day we can be fine, the next day feel just awful and then swing back to some sort of normality just as quickly - the RA is a fickle beast indeed!

[Hidden]

Thanks guys.l. All this makes me feel so normal!!?? It does really... means I am not alone. I do get that blooming headaches and I am going to ask dr to change the tabs, see if that works. Where would I be without you all Julie x

[Tricia-P in reply to Hidden]

Ju

i take a day off then start reading bloggs tears down cheeks laughing how we would look if aliens landed with us all either counting pills for the day week or month, then still saying we have a headache, now remember Mands blog then the new Boots advert with the man shaking the paracetamol box. classic.

Tx

[Hidden]

we are normal together abnormal if you get it !!!????

[Hidden in reply to Hidden]

Funny thing is ... yes I do!! lol

[Hidden in reply to Hidden]

Hi Julie, just reading through some bloggs and read the above. Normal!! well whatever it is your taking I'll have some, been ages since I felt normal!!

mand xx