Another Challenge

[cris1728]

Hi all,

Another challenge facing me, Was diagnosed with RA in 2012 and been treated with Methotrexate since 2013. Was doing quite well until recently when started having headaches, dizziness and balance problems. Have had a mild facial palsy and parasthesia for 2 years but this was not taken seriously by my GP as no functional issues and only sensory. Recently my health has taken a nose dive. Have had CT head which showed some small vessel disease, seen a neurologist who feels I have rheumatoid cerebral vasculitis, had an MRI and blood tests and am awaiting review at the end of the month. Last week I had an episode where I felt dizzy,faint,fevers and tremors and I thought I was "Going". I ended up in A&E and came round ( my BP had been very low ) all other tests were normal and I was discharged home to follow up with neurologist as he is investigating me. Advised to see if I can get appointment brought forward but no success. Yesterday had a fall when I went to the shop. Haven't driven since last week. I didn't hurt myself and no-one saw me. Only my pride was wounded although I do feel a bit stiff this morning. Just feeling frustrated that I don't know whats going on or what to expect.

Sorry for the long rant.

Cris

[Caza]

I have no advice to give just wanted to say I really feel for you. It sounds awful. I do hope you get seen soon. GPs are usually pretty at speeding up hospital appointments if they think it’s needed.

[cris1728 in reply to Caza]

Thanx so much for your reply. I just feel frustrated and in limbo. Have an appt this morning to see GP as sick note runs out today and I made it when I got the last one as its a nightmare trying to get through the guardians of the gate at the reception so I got online access. Also seeing a really good and understanding GP as I dont see the same one twice usually. I will ask her if there is anything she can do. Want to get on with any treatment, feel a bit better,know where I am and what to expect and get back to work xx

[Ruth12345]

Same as caza. Maybe start getting on the fone more to be seen early as waiting isnt helpful for you.....stating the blooming obvious, bit really you have gone thru enough surely for your appt to be brought forward or ring and say you will take a last minute cancelation. Take care.

[Gnarli]

You go ahead and have a rant. I reckon you're entitled and we all need a safety valve from time to time. I'm truly sorry you have yet another thing to cope with and waiting in limbo makes it so much worse. I hope your appointment comes through very soon. Hugs

J

[cris1728]

Thanks everyone so nice to know can come on here to rant and get some support from people who understand the frustrations and challenges you face. Update have been to see GP today off work now till 17th Dec. have had CXR and got an appointment for more bloods taking on 13th Nov. Have a review booked with same GP for 30th Nov, to get results from investigations and OPA with neurologist which is on 29th Nov. Have spoken to neurology dept . No appointments any earlier but am on list to contact for a short notice cancellation appointment . Feeling now that I have a bit more of a plan in place .

Thanks everyone for your support and hugs it really does mean a lot xx

[Stormpetrel]

Dear Cris1728

I don’t have anything to offer except sending my very best wishes for making positive progress down the airwaves!

I too was diagnosed in 2012, not a great year And missing all the Olympic fun!

All the best

[cris1728 in reply to Stormpetrel]

I missed it too but a good year as daughter got married and I retired xx